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健康相关生活质量反映慢性病的疗效,用于流行病学和健康经济学研究,研究工具多见于成人.炎症性肠病是迁延难愈的慢性病,评估这些患儿健康相关相关性生活质量具有重要的意义.该文介绍国际上4种广泛运用的一般性和疾病特异性研究工具.一般性工具均具有计量心珲学特征的有效性、可靠性和敏感性,但存在文化差异.特异性调查问卷具有疾病特异性,且符合计量心理学的标准,具有测试-再测试稳定性及构造有效性和通用性.

Health -related quality of life is used as an outcome criterion to evaluate the quality and effect of different therapies. It's also frequently used in epidemiological studies, as well as health economic research.Instruments to assess health-related quality of life has been developed, mostly for adults. Inflammatory bowel disease is a chronic debilitating disorder. Assessing health-related quality of life of pediatric inflammatory bowel disease is useful. Present paper briefly describes four internationally most widely used available generic instruments and inflammatory bowel disease specific health-related quality of life. All of the generic instruments comply with psychometric standards concering the reliability, validity, and sensitivity of the scales. Diseasespecific instruments, conforming with psychometric criteria, have test-retest stability, constructive validity and could be widely used.