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Chinese Internet Searches Provide Inaccurate and Misleading Information to Epilepsy Patients

摘要:

Background: Most patients with epilepsy want to learn as much as possible about the disease, and many have turned to the internet for information.Patients are likely to use information obtained from the internet to control their epilepsy, but little is known about the accuracy of this information.In this survey, we have assessed the feasibility and usability ofinternet-based interventions for the treatment of epilepsy.Methods: Data were collected from an internet search.Different search terms were used to obtain general information on epilepsy together with information about medication, types of epilepsy, treatment, women's health, and other information.The accuracy of the information was evaluated by a group of experts.Results: A total of 1320 web pages were assessed.The majority were websites related to health.A large number (80.2%) of web pages contained content related to the search term.A significant number of web pages 450/1058 (42.5%) claimed to provide information from a credible source;however, only 206/1058 (19.5%) of the information was accurate and complete;326/1058 (30.8%) was accurate but incomplete;328/1058 (31.0%) was correct but nonstandard, and 198/1058 (18.8%) was inaccurate.The authenticity of the information was not significantly different between the two search engines (x2 =0.009, P =0.924).No significant difference was observed in the information obtained from a specialist or nonspecialist source (x2 =7.538, P =0.057).There was also no correlation between the quality of the information and the priority (x2 =6.880, P =0.076).Conclusions: Searching for information about epilepsy on the internet is convenient, but the information provided is not reliable.Too much information is inaccurate or for advertisement purposes, and it is difficult for patients to find the useful information.Turning to the internet for medical knowledge may be harmful.Physicians should be aware that their patients may search for information on the internet and guide them to safe, reputable websites.

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作者单位: Affiliated Bayi Brain Hospital, Bayi Clinical College, Southern Medical University, Beijing 100700, China [1] Department of Function Neurosurgery, Beijing Xuanwu Hospital, Beijing 100053, China [2] Department of Neurology, China-Japan Friendship Hospital, Beijing 100029, China [3] Department of Neuroelectrophysiology, Beijing Tiantan Hospital, Beijing 100050, China [4]
期刊: 《中华医学杂志(英文版)》2015年128卷24期 3324-3328页 SCIMEDLINEISTICCSCDBP
栏目名称: Original Articles
DOI: 10.4103/0366-6999.171425
发布时间: 2016-01-16
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