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目的? 探讨设立随访中心对先天性心脏病(简称先心病)介入治疗患儿父母感知脆弱和焦虑的影响.方法? 采用目的抽样法,选取2017年9?—12月在哈尔滨医科大学附属第二医院心内科进行先心病介入治疗的患儿父母80名为研究对象.讲2017年9?—10月入院的患儿父母设为对照组,2017年11—12月的患儿父母设为试验组.对照组采用常规出院指导,试验组纳入随访中心对其进行干预.采用父母感知脆弱量表、SAS评价干预的效果.结果? 干预前两组患儿父母感知脆弱量表得分差异无统计学意义(P＞0.05),出院时及出院后3个月试验组患儿父母感知脆弱量表得分低于对照组,差异有统计学意义(P＜0.01);干预前两组患儿父母SAS得分差异无统计学意义(P＞0.05),出院时及出院后3个月试验组患儿父母SAS得分低于对照组,差异有统计学意义(P＜0.05).结论? 通过设立随访中心对患儿父母进行干预能有效减轻患儿父母的感知脆弱和焦虑水平,建议进一步在临床推广应用.

Objective? To investigate the impact of establishing a follow-up center on the perception of vulnerability and anxiety in the parents of children of congenital heart disease (CHD) undergoing interventional therapy. Methods? A total of 80 parents of children with CHD undergoing interventional therapy in the Cardiology Department of the Second Affiliated Hospital of Harbin Medical University from September 2017 to December 2017 were selected as study subjects by purposive sampling method. The parents of the children admitted to hospital from September to October in 2017 were the control group, while the parents of children in the period from November to December in 2017 were the experimental group. The control group were given general discharge guidance, and the intervention group was included in the Follow-up Center for intervention. Parent Perception of Vulnerability Scale and Self-rating Anxiety Scale (SAS) were applied to evaluate the intervention effects. Results? There was no statistical significance in the difference in scores of Parent Perception of Vulnerability Scale between the two groups before intervention (P＞0.05). The scores of Parent Perception of Vulnerability Scale at the time of discharge and 3 months after intervention of the experimental group were lower than those of the control group, and the difference was statistically significant (P＜ 0.01). There was no statistical significance in the difference in the scores of SAS between the two groups before intervention (P＞0.05). At the time of discharge and 3 months after intervention, the score of SAS was lower in the experimental group than in the control group, and the difference was statistically significant (P＜0.05). Conclusions? Setting up the Follow-up Center for parents of children can effectively reduce the perceived vulnerability and anxiety of them, and it is suggested that they should be further popularized and applied clinically.