摘要目的 探讨自我管理对社区慢性阻塞性肺疾病(慢阻肺)患者生命质量的影响.方法龙华社区3个居委会共130例慢阻肺患者,随机数字法分为干预组(65例)与对照组(65例),对照组采用常规健康教育模式,干预组实施自我管理教育模式.分别在干预前、干预后6个月采用慢性病自我管理研究测量表中文版及中文版SF-36简表进行测评.结果 干预后6个月,对照组患者的慢性病自我管理量表得分为整体健康(3.52±0.64)、症状(18.86±3.06)、气短(3.92±1.74)、躯体功能(8.15±0.51)及对生活的影响(22.21±7.14)分,干预组患者得分为整体健康(2.43±0.43)、症状(15.68±3.66)、气短(2.06±1.30)、躯体功能(5.73±1.08)及对生活的影响(16.43±5.17)分,有显著改善,两组间差异均有统计学意义(P<0.05);干预组患者的SF-36生活质量各维度及总分(71.63 ± 8.11)高于对照组(52.41 ± 7.90),两组间差异有统计学意义(P<0.05).结论 慢阻肺患者进行有效的自我管理,可改善症状,提高自我管理能力及自身生命质量.

abstractsObjective To evaluate the impacts of self-management on quality of life of patients with chronic obstructive pulmonary disease (COPD) in community. Method A total of 130 patients with COPD from selected 3 neighbourhood residential committees in Longhua community were randomized into intervention group (65 cases) and control group (65 cases). The control group was treated with conventional health education, the intervention group was treated with self-management education program. Both groups were evaluated by the Chinese version of the chronic disease self-management study measures and SF-36 profile before and after the 6 months intervention. Result After 6 months, the scores of the chronic disease self-management study in the control group were holistic health (3.52 ± 0.64), symptom (18.86 ± 3.06), shortness of breath (3.92 ± 1.74), somatic function (8.15 ± 0.51) and impact on life (22.21 ± 7.14), while the scores in the intervention group were holistic health (2.43±0.43), symptom (15.68±3.66), shortness of breath (2.06 ± 1.30), somatic function (5.73 ± 1.08) and impact on life (16.43 ± 5.17) , and the differences were statistically significant (P<0.01). Compared with the control group, the dimensions and total score of quality of life of the intervention group were (52.41±7.90 vs. 71.63±8.11, P<0.01). Conclusion The effective self-management could improve symptoms, the ability of self-management and their quality of life.