摘要目的:探讨脑瘫患儿主要照顾者疾病获益感及影响因素。方法:采取随机抽样的方法，选取2020年11月至2021年1月在温州医科大学附属第二医院儿童康复科门诊及住院病房的脑瘫患儿主要照顾者158例为研究对象。使用基本资料调查表、中文版疾病获益感量表、简易应对方式问卷、领悟社会支持量表进行调查，采用单因素分析、Pearson相关分析、多元线性回归分析等探讨脑瘫患儿主要照顾者疾病获益感及影响因素。结果:脑瘫患儿主要照顾者的疾病获益感得分为（62.4±7.0）分，呈中等偏上水平。患儿确诊年限、医疗费用支付方式、居住地和照顾患儿时长对脑瘫患儿主要照顾者的疾病获益感具有显著影响（ F=3.45、3.75、3.97、6.60，均 P<0.05）。主要照顾者疾病获益感与积极应对方式、家人支持、朋友支持、他人支持和领悟社会支持呈正相关（ r=0.43、0.20、0.32、0.24、0.30，均 P<0.05），与消极应对方式呈负相关（ r=-0.36， P<0.01）。脑瘫患儿主要照顾者影响因素的重要程度依次为：积极应对方式、居住地和照顾患儿时长（标准化回归系数分别为0.33、0.22、-0.32，均 P<0.05）。 结论:脑瘫患儿主要照顾者的疾病获益感较好，患儿居住地、照顾患儿时长和应对方式是影响主要照顾者疾病获益感的主要因素。

abstractsObjective:To explore the benefit finding and influencing factors of primary caregivers of children with cerebral palsy.Methods:This study adopted the method of random sampling, 158 primary caregivers of children with cerebral palsy in the outpatient and inpatient wards of the Children′s Rehabilitation Department of the Second Affiliated Hospital of Wenzhou Medical University from November 2020 to January 2021 were selected as the research objects. The basic data questionnaire, Chinese version of benefit finding scale, simple coping style questionnaire and perceived social support scale were used to do investigation. The influencing factors of benefit finding of main caregivers of children with cerebral palsy were investigated by single factor analysis, Pearson correlation analysis and multiple linear regression analysis.Results:The score of benefit finding of the main caregivers of children with cerebral palsy was (62.4±7.0),which was above the middle level. The years of diagnosis, the payment method of medical expenses, the place of residence and the length of caring for children had a significant impact on the benefit finding of the main caregivers of children with cerebral palsy ( F=3.45, 3.75, 3.97, 6.60, all P<0.05). The main caregivers′ sense of benefit finding was positively correlated with positive coping style, family support, friend support, others′ support and perceived social support ( r=0.43, 0.20, 0.32, 0.24, 0.30, all P<0.05), and negatively correlated with negative coping style ( r=-0.36, P<0.01).The importance of those factors influencing the benefit finding of the main caregivers of children with cerebral palsy was as follows: positive coping style, place of residence and length of caring for children (standardized regression coefficients were 0.33, 0.22, -0.32, all P<0.05). Conclusions:The main caregivers of children with cerebral palsy have a good sense of benefit finding. The main factors affecting the benefit finding of the main caregivers are the children′s residence, the length of care and coping style.