"in the Patients' Hands"- a Structured Survey of Patient Voices to Prioritise Research Questions in Rare Inherited Anaemias: The James Lind Alliance Priority Setting Partnership

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作者： Welch, Jenny ^[1] ; Meade, Nick ^[2] ; Messenger, Dominic ^[3] ; Hunter, Amy ^[4] ; Rao, Anupama ^[5] ; Chakravorty, Subarna ^[6] ; Wearmouth, Rachel ^[7] ; Chalin, Anju ^[8] ; Staley, Kristina ^[9] ; Upadhyaya, Sheela ; Roberts, Irene ; Roy, Noemi

作者单位： Univ Oxford, Weatherall Inst Mol Med, MRC Mol Haematol Unit, Oxford, England ^[1] Univ Oxford, Biomed Res Ctr, Oxford, England ^[2] Genet Alliance UK, CAN Mezzanine, London, England ^[3] Weatherall Inst Mol Biol, Oxford, England ^[4] James Lind Alliance, London, England ^[5] Genet Alliance UK, London, England ^[6] Kings Coll Hosp London, London, England ^[7] DBA UK, London, England ^[8] Great Ormond St Hosp Sick Children, London, England ^[9]

发布时间 2020-08-21

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