Engaging community stakeholders in research on best practices for clinical genomic sequencing

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作者： Ida Griesemer ^[1] ; Brooke S Staley ^[2] ; Alexandra F Lightfoot ^[3] ; Lizzy Bain ^[4] ; Derrick Byrd ^[5] ; Carol Conway ^[6] ; Tracey L Grant ^[7] ; Barbara Leach ^[8] ; Laura Milko ^[9] ; Lonna Mollison ^[10] ; Nadiah Porter ; Sharron Reid ; Gerri Smith ; Margaret Waltz ; Jonathan S Berg ; Christine Rini ; Julianne M O'Daniel

作者单位： Parent/Advocate, Parent Advocates for Adult Children with Intellectual &/or Developmental ^[1] Department of Social Medicine, UNC Chapel Hill ^[2] Parent/Advocate ^[3] Department of Medical Social Sciences, Feinberg School of Medicine & Robert H. Lurie Comprehensive ^[4] Parent/Advocate, Family Resource Center South Atlantic ^[5] Parent/Advocate, Family Support Program, School of Social Work, UNC Chapel Hill ^[6] Parent/Advocate, Wake County Sickle Cell Support Group ^[7] Department of Health Behavior, UNC Chapel Hill ^[8] Department of Epidemiology, UNC Chapel Hill ^[9] Department of Genetics, UNC Chapel Hill ^[10]

关键词 clinical trial community–academic partnerships community engagement diagnostic odyssey genetics genomic sequencing health equity health services research precision medicine underserved populations

发布时间 2021-08-05

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