换一批Standardising clinical outcomes measures for adult clinical trials in Fabry disease: A global Delphi consensus
第一作者：
Moreno-Martinez, D.
作者：
Moreno-Martinez, D. [1]
;
Aguiar, P. [2]
;
Auray-Blais, C. [3]
;
Beck, M. [4]
;
Bichet, D. G. [5]
;
Burlina, A. [6]
;
Cole, D. [7]
;
Elliott, P. [8]
;
Feldt-Rasmussen, U. [9]
;
Feriozzi, S. [10]
;
Fletcher, J. [11]
;
Giugliani, R. [12]
;
Jovanovic, A. [13]
;
Kampmann, C. [14]
;
Langeveld, M. [15]
;
Lidove, O. [16]
;
Linhart, A. [17]
;
Mauer, M. [18]
;
Moon, J. C. [19]
;
Muir, A. [20]
;
Nowak, A. [21]
;
Oliveira, J. P. [22]
;
Ortiz, A. [23]
;
Pintos-Morell, G. [24]
;
Politei, J. [25]
;
Rozenfeld, P. [26]
;
Schiffmann, R. [27]
;
Svarstad, E. [28]
;
Talbot, A. S. [29]
;
Thomas, M. [30]
;
Tondel, C. [31]
;
Warnock, D. [32]
;
West, M. L. ;
Hughes, D. A.
作者单位：
Lysosomal Storage Disorders Unit,Royal Free Hosp NHS Fdn Trust
[1]
Inborn Errors Metab Reference Ctr,North Lisbon Hosp Ctr
[2]
Fac Med & Hlth Sci,Univ Sherbrooke
[3]
Univ Med Ctr,Johannes Gutenberg Univ Mainz
[4]
Unite Rech Clin,Hop Sacre Coeur Montreal
[5]
Neurol Unit,St Bassiano Hosp
[6]
Dept Med Biochem & Immunol,Univ Hosp Wales
[7]
Barts Cardiac Ctr,UCL
[8]
Med Endocrinol & Metab,Rigshosp
[9]
Div Nephrol,Belcolle Hosp
[10]
Genet & Mol Pathol,SA Pathol Womens & Childrens Hosp
[11]
Med Genet Serv,Univ Fed Rio Grande do Sul
[12]
Dept Endocrinol & Metab Med,Salford Royal NHS Fdn Trust
[13]
Acad Med Ctr,Univ Amsterdam
[14]
Hop Bichat Claude Bernard,Univ Paris 07
[15]
Fac Med 1,Charles Univ Prague
[16]
Dept Paediat,Univ Minnesota
[17]
Cardiac Imaging Dept,Barts Heart Ctr
[18]
Belfast Heart Ctr,Royal Victoria Hosp
[19]
Dept Endocrinol & Clin Nutr,Univ Hosp Zurich
[20]
Serv Med Genet,Sao Joao Univ Hosp Ctr
[21]
Area Patol Cardiovasc Renal & Hipertens,Fdn Jimenez Diaz IIS FJD
[22]
Vall Hebron Univ Hosp,Univ Autonoma Barcelona
[23]
Fdn Study Neurometab Dis,FESEN
[24]
Dept Ciencias Biol,Univ Nacl La Plata
[25]
Inst Metab Dis,Baylor Res Inst
[26]
Dept Clin Med,Univ Bergen
[27]
Dept Nephrol,Royal Melbourne Hosp
[28]
Dept Nephrol,Royal Perth Hosp
[29]
Clin Trials Unit,Haukeland Hosp
[30]
Div Nephrol,Univ Alabama Birmingham
[31]
Med,Dalhousie Univ
[32]
发布时间
2023-04-28
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Molecular genetics and metabolism
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