首页> Journal of the American Medical Informatics Association : JAMIA> Harnessing person-generated health data to accelerate patient-centered outcomes research: the Crohn's and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners).

Harnessing person-generated health data to accelerate patient-centered outcomes research: the Crohn's and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners).

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第一作者： Arlene E,Chung

第一单位： Department of Pediatrics, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA Department of Internal Medicine, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA Carolina Health Informatics Program, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA arlene_chung@med.unc.edu.

作者： Arlene E,Chung ^[1] ; Robert S,Sandler ^[2] ; Millie D,Long ^[2] ; Sean,Ahrens ^[3] ; Jessica L,Burris ^[4] ; Christopher F,Martin ^[5] ; Kristen,Anton ^[6] ; Amber,Robb ^[5] ; Thomas P,Caruso ^[7] ; Elizabeth L,Jaeger ^[5] ; Wenli,Chen ^[5] ; Marshall,Clark ^[5] ; Kelly,Myers ^[8] ; Angela,Dobes ^[9] ; Michael D,Kappelman ^[10]

作者单位： Department of Pediatrics, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA Department of Internal Medicine, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA Carolina Health Informatics Program, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA arlene_chung@med.unc.edu. ^[1] Department of Internal Medicine, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA Center for Gastrointestinal Biology and Disease, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA. ^[2] Crohnology, San Francisco, CA, USA. ^[3] Vanderbilt University School of Medicine (PCORI Representative, CCFA Partners Patient Governing Committee), Nashville TN, USA. ^[4] Center for Gastrointestinal Biology and Disease, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA. ^[5] Center for Gastrointestinal Biology and Disease, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA White River Computing, LLC, Irvington, NY, USA. ^[6] School of Information and Library Science, University of North Carolina, Chapel Hill, NC USA. ^[7] Atomo, Inc., Austin, TX, USA. ^[8] Crohn's and Colitis Foundation of America, New York, NY, USA. ^[9] Department of Pediatrics, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA Center for Gastrointestinal Biology and Disease, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA. ^[10]

关键词 PGHD patient engagement patient-centered outcomes research patient-reported outcomes person-generated health data wearables