Adult Congenital Heart Disease Patients Experience Similar Symptoms of Disease Activity.

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作者： Ari M,Cedars ^[1] ; Ada,Stefanescu Schmidt ^[2] ; Craig,Broberg ^[2] ; Ali,Zaidi ^[2] ; Alexander,Opotowsky ^[2] ; Jasmine,Grewal ^[2] ; Joseph,Kay ^[2] ; Ami B,Bhatt ^[2] ; Eric,Novak ^[2] ; John,Spertus ^[2] ; Alliance for Adult Research in Congenital Cardiology (AARCC)

作者单位： From the Baylor University Medical Center, Dallas, TX (A.M.C.); Massachusetts General Hospital, Boston (A.S., A.B.); Oregon Health Sciences University, Portland (C.B.); Montefiore Medical Center, New York, NY (A.Z.); Boston Children's Hospital, MA (A.O.); University of British Columbia, Vancouver (J.G.); University of Colorado, Denver (J.K.); Washington University, St. Louis, MO (E.N.); and St. Luke's Mid-America Heart Institute, Kansas City, KS (J.S.). acedars@dom.wustl.edu. ^[1] From the Baylor University Medical Center, Dallas, TX (A.M.C.); Massachusetts General Hospital, Boston (A.S., A.B.); Oregon Health Sciences University, Portland (C.B.); Montefiore Medical Center, New York, NY (A.Z.); Boston Children's Hospital, MA (A.O.); University of British Columbia, Vancouver (J.G.); University of Colorado, Denver (J.K.); Washington University, St. Louis, MO (E.N.); and St. Luke's Mid-America Heart Institute, Kansas City, KS (J.S.). ^[2]

关键词 adult congenital heart disease disease-specific symptoms outcome assessment patient-reported outcome quality of life