"They Just Want to Know" - Genetic Health Professionals' Beliefs About Why Parents Want to Know their Child's Carrier Status.

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第一作者： Danya F,Vears

第一单位： Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, 3000, Leuven, Belgium. danya.vears@kuleuven.be.

作者： Danya F,Vears ^[1] ; Clare,Delany ^[2] ; John,Massie ^[3] ; Lynn,Gillam ^[4]

作者单位： Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 35, 3000, Leuven, Belgium. danya.vears@kuleuven.be. ^[1] Centre for Health Equity, Melbourne School of Population and Global Health, University of Melbourne, Parkville, Australia. danya.vears@kuleuven.be. ^[2] Murdoch Childrens Research Institute, Parkville, Australia. danya.vears@kuleuven.be. ^[3] Children's Bioethics Centre, Royal Children's Hospital, Parkville, Australia. ^[4] Department of Medical Education, Melbourne Medical School, University of Melbourne, Parkville, Australia. ^[5] Murdoch Childrens Research Institute, Parkville, Australia. ^[6] Department of Respiratory Medicine, Royal Children's Hospital, Parkville, Australia. ^[7] Department of Paediatrics, University of Melbourne, Parkville, Australia. ^[8] Centre for Health Equity, Melbourne School of Population and Global Health, University of Melbourne, Parkville, Australia. ^[9]

关键词 Carrier testing Children, parenting Communication Disclosure Gatekeeping Genetic counseling Genetic testing