A Global Approach to Rare Diseases Research and Orphan Products Development: The International Rare Diseases Research Consortium (IRDiRC).

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第一作者： Christine M,Cutillo

第一单位： Health Science Policy Analyst, National Center for Advancing Translational Sciences, 6701 Democracy Blvd Rm 988, Bethesda, MD, 20817, USA. cutilloc@mail.nih.gov.

作者： Christine M,Cutillo ^[1] ; Christopher P,Austin ^[2] ; Stephen C,Groft ^[2]

作者单位： Health Science Policy Analyst, National Center for Advancing Translational Sciences, 6701 Democracy Blvd Rm 988, Bethesda, MD, 20817, USA. cutilloc@mail.nih.gov. ^[1] National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, MD, 20892-1851, USA. ^[2]

关键词 Collaborative model Consortium Data sharing Data standards Diagnostics International Policy Therapies

主题词生物医学研究(Biomedical Research);人类(Humans);国际合作(International Cooperation);孤儿药生产(Orphan Drug Production);规划制订(Program Development);少见病(Rare Diseases);研究设计(Research Design)

DOI 10.1007/978-3-319-67144-4_20

PMID 29214582

发布时间 2018-06-04

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准确一般字义偏差语意偏离译文作用小提交