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Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.

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作者单位: Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, WA, USA. Lauraa7@uw.edu. [1] Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, 77030, USA. [2] Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, WA, USA. [3] Department of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA, 19104, USA. [4] Division of Translational Medicine and Human Genetics, Department of Medicine, Perelman School of Medicine at The University of Pennsylvania, Philadelphia, PA, 19104, USA. [5] HudsonAlpha Institute for Biotechnology, Huntsville, AL, 35806, USA. [6] Department of Medical Genetics, Kaiser Permanente Northwest, Portland, OR, 97227, USA. [7] Center for Health Research, Kaiser Permanente Northwest, Portland, OR, 97227, USA. [8] Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, MD, 20892, USA. [9] Departments of Pediatrics and Genetics, University of North Carolina-Chapel Hill, Chapel Hill, NC, 27599, USA. [10] Department of Pediatrics, Baylor College of Medicine, Houston, TX, 77030, USA. [11] Department of Pediatrics, Columbia University, New York, NY, 10032, USA. [12] Division of Genetics, Department of Medicine, Brigham and Women's Hospital, Boston, MA, 02115, USA. [13]
DOI 10.1007/s10897-018-0243-7
PMID 29497922
发布时间 2023-06-01
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