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Measuring Health-Related Quality of Life in Tuberous Sclerosis Complex - Psychometric Evaluation of Three Instruments in Individuals With Refractory Epilepsy.

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第一作者： Petrus J,de Vries

第一单位： Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.

作者： Petrus J,de Vries ^[1] ; David N,Franz ^[2] ; Paolo,Curatolo ^[3] ; Rima,Nabbout ^[4] ; Maureen,Neary ^[5] ; Fabian,Herbst ^[6] ; Kate,Sully ^[7] ; Elaine,Brohan ^[7] ; Bryan,Bennett ^[7] ; John A,Lawson ^[8]

作者单位： Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa. ^[1] Department of Pediatrics and Neurology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States. ^[2] Tor Vergata University Hospital, Rome, Italy. ^[3] Hospital Necker-Enfants Malades, Paris Descartes University, Paris, France. ^[4] Novartis Pharmaceuticals Corporation, East Hanover, NJ, United States. ^[5] Novartis Pharma AG, Basel, Switzerland. ^[6] Adelphi Values, Bollington, United Kingdom. ^[7] Tuberous Sclerosis Multidisciplinary Management Clinic, Sydney Children's Hospital, Randwick, NSW, Australia. ^[8]

关键词 QOLCE QOLIE-31-P QOLIE-AD-48 health related quality of life psychometric properties refractory epilepsy tuberous sclerosis complex

DOI 10.3389/fphar.2018.00964

PMID 30214408

发布时间 2024-03-30

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