The Epidemiology of Transition into Adulthood of Rare Diseases Patients: Results from a Population-Based Registry.

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第一作者： Monica,Mazzucato

第一单位： Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. monica.mazzucato@regione.veneto.it.

作者： Monica,Mazzucato ^[1] ; Laura,Visonà Dalla Pozza ^[2] ; Cinzia,Minichiello ^[3] ; Silvia,Manea ^[4] ; Sara,Barbieri ^[5] ; Ema,Toto ^[6] ; Andrea,Vianello ^[7] ; Paola,Facchin ^[8]

作者单位： Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. monica.mazzucato@regione.veneto.it. ^[1] Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. laura.visonadallapozza@regione.veneto.it. ^[2] Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. cinzia.minichiello@regione.veneto.it. ^[3] Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. silvia.manea@regione.veneto.it. ^[4] Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. sara.barbieri@regione.veneto.it. ^[5] Rare Diseases Coordinating Center, Rare Diseases Registry, Veneto Region, 35100 Padua, Italy. ema.toto@regione.veneto.it. ^[6] Department of Women's and Children's Health, University of Padua, 35100 Padua, Italy. andrea.vianello@unipd.it. ^[7] Department of Women's and Children's Health, University of Padua, 35100 Padua, Italy. paola.facchin@unipd.it. ^[8]

关键词 epidemiology rare diseases registry transition