Care for children with severe chronic skin diseases.

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作者： Hannelore,De Maeseneer ^[1] ; Dirk,Van Gysel ^[1] ; Sofie,De Schepper ^[2] ; Carsten R,Lincke ^[3] ; Barbara J,Sibbles ^[3] ; Josette J W M,Versteegh ^[4] ; Welling,Oei ^[5] ; Robert F,Pangalila ^[6] ; Suzanne G M A,Pasmans ^[7]

作者单位： Department of Pediatrics, O.L.Vrouw Hospital, Aalst, Belgium. ^[1] Department of Dermatology, Ghent University Hospital, Ghent, Belgium. ^[2] Department of Pediatrics, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands. ^[3] Department of Child and Adolescent Psychiatry/Psychology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands. ^[4] Department of Dermatology, Erasmus MC-Sophia Children's Hospital Rotterdam-Center of Pediatric Dermatology, Rotterdam, The Netherlands. ^[5] Department of Rehabilitation Medicine, Erasmus MC University Medical Center, Rotterdam, The Netherlands. ^[6] Department of Dermatology, Erasmus MC-Sophia Children's Hospital Rotterdam - Center of Pediatric Dermatology, Health Care Provider of the European Reference Network SKIN, Wytemaweg 80, 3015 CN, Rotterdam, The Netherlands. s.pasmans@erasmusmc.nl. ^[7]

关键词 Evaluation of care Multidisciplinary approach Pediatric dermatology Quality of life Severe congenital skin disorders