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Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire.

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第一作者： Magdalena,Harrington

第一单位： Shire (a member of the Takeda group of companies), Lexington, MA, USA. magdalena.a.harrington@pfizer.com.;Present Address: Pfizer, 610 Main St, Cambridge, MA, 02139, USA. magdalena.a.harrington@pfizer.com.

作者： Magdalena,Harrington ^[1] ; Asha,Hareendran ^[2] ; Anne,Skalicky ^[2] ; Hilary,Wilson ^[3] ; Marci,Clark ^[4] ; Jaromir,Mikl ^[5]

作者单位： Shire (a member of the Takeda group of companies), Lexington, MA, USA. magdalena.a.harrington@pfizer.com.;Present Address: Pfizer, 610 Main St, Cambridge, MA, 02139, USA. magdalena.a.harrington@pfizer.com. ^[1] Evidera, Bethesda, MD, USA. ^[2] Evidera, Bethesda, MD, USA.;Present Address: Boehringer Ingelheim Pharmaceuticals, Inc., Ridgefield, CT, USA. ^[3] RTI Health Solutions, Ann Arbor, MI, USA. ^[4] Shire (a member of the Takeda group of companies), Lexington, MA, USA.;Present Address: Purdue Pharma, Stamford, CT, USA. ^[5]

关键词 Caregiver questionnaire Lysosomal storage disease MLD MPS II MPS IIIA Metachromatic leukodystrophy Mucopolysaccharidosis type II Mucopolysaccharidosis type IIIA

DOI 10.1186/s41687-019-0140-3

PMID 31338630

发布时间 2020-09-30

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Journal of patient-reported outcomes

2019年3卷1期

44页

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Journal of patient-reported outcomes

2019年3卷1期

44页

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Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire.

Journal of patient-reported outcomes

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Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire.

Journal of patient-reported outcomes

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Journal of patient-reported outcomes

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