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首页> Medical decision making : an international journal of the Society for Medical Decision Making> Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations.

Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations.

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作者： Dmitry,Khodyakov ^[1] ; Sean,Grant ^[1] ; Brian,Denger ^[2] ; Kathi,Kinnett ^[3] ; Ann,Martin ^[3] ; Marika,Booth ^[3] ; Courtney,Armstrong ^[1] ; Emily,Dao ^[1] ; Christine,Chen ^[4] ; Ian,Coulter ^[4] ; Holly,Peay ^[1] ; Glen,Hazlewood ^[5] ; Natalie,Street ^[6]

作者单位： RAND Health Care, Santa Monica, CA, USA. ^[1] Department of Social & Behavioral Sciences, Indiana University Richard M. Fairbanks School of Public Health, Indianapolis, IN, USA. ^[2] Parent Project Muscular Dystrophy, Hackensack, NJ, USA. ^[3] RAND, Santa Monica, CA, USA. ^[4] RTI International, Research Triangle Park, NC, USA. ^[5] Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada. ^[6] Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Atlanta, GA, USA. ^[7]

关键词 Duchenne muscular dystrophy Duchenne muscular dystrophy (DMD) care considerations RAND/PPMD Patient-Centeredness Method (RPM), recombinant human growth hormone (rhGH)clinical practice guidelines online modified delphi patient engagement

主题词身高(Body Height);体重(Body Weight);骨和骨组织(Bone and Bones);医疗护理提供者(Caregivers);德尔菲技术(Delphi Technique);女(雌)性(Female);指导方针(主题)(Guidelines as Topic);人类(Humans);因特网(Internet);男(雄)性(Male);肌营养不良, 杜氏(Muscular Dystrophy, Duchenne);以病人为中心医护(Patient-Centered Care);病人(Patients);青春期(Puberty);随机分配(Random Allocation)

DOI 10.1177/0272989X19883631

PMID 31722623

发布时间 2023-10-20

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Medical decision making : an international journal of the Society for Medical Decision Making

Medical decision making

2019年39卷8期

1019-1031页

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