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Pediatric Outcomes Data Collection Instrument is a Useful Patient-Reported Outcome Measure for Physical Function in Children with Osteogenesis Imperfecta.

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第一作者： Chaya N,Murali

第一单位： Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA.;Texas Children's Hospital, Houston, Texas, USA.

作者： Chaya N,Murali ^[1] ; David,Cuthbertson ^[2] ; Brady,Slater ^[3] ; Dianne,Nguyen ^[3] ; Alicia,Turner ^[1] ; Gerald,Harris ^[4] ; V Reid,Sutton ^[1] ; Brendan,Lee ^[1] ; Members of the BBD Consortium ^[5] ; Sandesh C S,Nagamani

作者单位： Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA.;Texas Children's Hospital, Houston, Texas, USA. ^[1] College of Medicine, University of South Florida, Tampa, FL, USA. ^[2] Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA. ^[3] Marquette University and Medical College of Wisconsin, Wisconsin, USA. ^[4] Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA. nagamani@bcm.edu.;Texas Children's Hospital, Houston, Texas, USA. nagamani@bcm.edu. ^[5]

关键词 Pediatric Outcomes Data Collection Instrument clinical trial readiness health-related quality of life osteogenesis imperfecta patient-reported outcome measure