Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome.-论文-万方医学网

作者： Allison,Werner-Lin ^[1] ; Jennifer L,Young ^[2] ; Catherine,Wilsnack ^[3] ; Shana L,Merrill ^[4] ; Victoria,Groner ^[5] ; Mark H,Greene ^[6] ; Payal P,Khincha ^[3]

作者单位： School of Social Policy and Practice, University of Pennsylvania, 3701 Locust Walk, Philadelphia, PA, 19104, USA. awer@upenn.edu. ^[1] Stanford Center for Biomedical Ethics, Stanford, CA, USA. ^[2] Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, MD, USA. ^[3] School of Social Policy and Practice, University of Pennsylvania, 3701 Locust Walk, Philadelphia, PA, 19104, USA. ^[4] Hospital of the University of Pennsylvania, Philadelphia, PA, USA. ^[5] Center for Genetic Medicine, Feinberg School of Medicine, Chicago, IL, USA. ^[6]

主题词青少年(Adolescent);成年人(Adult);老年人(Aged);老年人, 80以上(Aged, 80 and over);预期, 心理(Anticipation, Psychological);居丧(Bereavement);儿童(Child);儿童, 学龄前(Child, Preschool);癌症早期检测(Early Detection of Cancer);家庭(Family);女(雌)性(Female);基因, p53(Genes, p53);遗传咨询(Genetic Counseling);悲痛(Grief);人类(Humans);Li-Fraumeni综合征(Li-Fraumeni Syndrome);男(雄)性(Male);中年人(Middle Aged);突变(Mutation);预后(Prognosis);定性研究(Qualitative Research);生活质量(Quality of Life);偏差(Uncertainty);青年人(Young Adult)

DOI 10.1007/s10689-020-00173-6

PMID 32222840

发布时间 2024-06-12

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Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome.

Familial cancer

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Familial cancer

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Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome.

Familial cancer

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Familial cancer

相关期刊

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