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The Status Quo of Rare Diseases Centres for the Development of a Clinical Decision Support System - A Cross-Sectional Study.

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作者单位: Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany. [1] Institute for Medical Informatics and Biometry, Carl Gustav Carus Faculty of Medicine, Technical University of Dresden, Dresden, Germany. [2] Chair of Medical Informatics, Department of Medical Informatics, Biometrics and Epidemiology, Friedrich-Alexander University Erlangen-Nürnberg, Erlangen, Germany. [3] Heinrich-Lanz-Centre for Digital Health, Department of Biomedical Informatics, University Medicine Mannheim, Mannheim, Germany. [4] Chair of the Coordinating Centre for Clinical Trials, Philipps University Marburg, Marburg, Germany. [5] Executive Department for Medical IT-Systems and Digitalisation, University Hospital Frankfurt, Frankfurt, Germany. [6] Central German Competence Network for Rare Diseases, University Hospitals Magdeburg & Halle, Germany. [7] University Centre for Rare Diseases, University Hospital Carl Gustav Carus Dresden, Dresden, Germany. [8] Mannheim Centre for Rare Diseases, University Medicine Mannheim, Medical Faculty Mannheim of the University of Heidelberg, Mannheim, Germany. [9] Centre for Rare Diseases Erlangen, University Hospital Erlangen, Erlangen, Germany. [10] Centre for undiagnosed and rare diseases, University Hospital Gießen and Marburg, Marburg, Germany. [11] Frankfurt Reference Centre for Rare Diseases, University Hospital Frankfurt, Frankfurt, Germany. [12] Freiburg Centre for Rare Diseases, Medical Faculty and Medical Centre - University of Freiburg, Freiburg, Germany. [13] Centre for Rare Diseases of the Nervous System, University Medicine Mainz, Mainz, Germany. [14] Institute of Medical Biometry and Statistics, Medical Faculty and Medical Centre - University of Freiburg, Freiburg, Germany. [15]
DOI 10.3233/SHTI200094
PMID 32578561
发布时间 2020-08-25
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