换一批Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
第一作者：
Sonja,Erikainen
第一单位：
Centre for Biomedicine, Self and Society, Usher Institute, The University of Edinburgh, Edinburgh, UK sonja.erikainen@ed.ac.uk.
作者：
Sonja,Erikainen [1]
;
Phoebe,Friesen [2]
;
Leah,Rand [3]
;
Karin,Jongsma [4]
;
Michael,Dunn [5]
;
Annie,Sorbie [6]
;
Matthew,McCoy [7]
;
Jessica,Bell [8]
;
Michael,Burgess [9]
;
Haidan,Chen [10]
;
Vicky,Chico [11]
;
Sarah,Cunningham-Burley [12]
;
Julie,Darbyshire [13]
;
Rebecca,Dawson [14]
;
Andrew,Evans [15]
;
Nick,Fahy [16]
;
Teresa,Finlay [16]
;
Lucy,Frith [17]
;
Aaron,Goldenberg [18]
;
Lisa,Hinton [19]
;
Nils,Hoppe [20]
;
Nigel,Hughes [21]
;
Barbara,Koenig [22]
;
Sapfo,Lignou [23]
;
Michelle,McGowan [24]
;
Michael,Parker [5]
;
Barbara,Prainsack [22]
;
Mahsa,Shabani [25]
;
Ciara,Staunton [26]
;
Rachel,Thompson [27]
;
Kinga,Varnai [28]
;
Effy,Vayena [29]
;
Oli,Williams [30]
;
Max,Williamson [31]
;
Sarah,Chan [12]
;
Mark,Sheehan [5]
作者单位：
Centre for Biomedicine, Self and Society, Usher Institute, The University of Edinburgh, Edinburgh, UK sonja.erikainen@ed.ac.uk.
[1]
Biomedical Ethics Unit, McGill University, Montreal, Quebec, Canada.
[2]
Harvard Medical School and PORTAL, Brigham and Women's Hospital, Boston, Massachusetts, USA.
[3]
Department of Medical Humanities, Julius Center, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.
[4]
The Ethox Centre and Wellcome Centre for Ethics and Humanities, University of Oxford, Oxford, UK.
[5]
Mason Institute for Medicine, Life Sciences and the Law, Edinburgh Law School, University of Edinburgh, Edinburgh, UK.
[6]
Department of Medical Ethics and Health Policy, University of Pennsylvania Perelman, Philadelphia, Pennsylvania, USA.
[7]
HeLEX, University of Oxford, Oxford, Oxfordshire, UK.
[8]
School of Population and Public Health, The University of British Columbia, Vancouver, British Columbia, Canada.
[9]
School of Health Humanities, Peking University, Beijing, China.
[10]
School of Law, University of Sheffield, Sheffield, UK.
[11]
Centre for Biomedicine, Self and Society, Usher Institute, The University of Edinburgh, Edinburgh, UK.
[12]
Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
[13]
Usher Institute, University of Edinburgh, Edinburgh, UK.
[14]
Melanoma Patient Network Europe, N/A, UK.
[15]
Primary Care Health Sciences, University of Oxford, Oxford, UK.
[16]
Institute of Population Health Sciences, University of Liverpool, Liverpool, UK.
[17]
Department of Bioethics, Case Western Reserve University, Cleveland, Ohio, USA.
[18]
THIS Institute, University of Cambridge, Cambridge, Cambridgeshire, UK.
[19]
Centre for Ethics and Law in the Life Sciences, Leibniz University, Hannover, Germany.
[20]
Observational Health Data Analytics/Epidemiology, Janssen Research and Development, Raritan, New Jersey, USA.
[21]
Department of Political Science, University of Vienna, Vienna, Austria.
[22]
NeuroSec and Wellcome Centre for Ethics and Humanities, University of Oxford, Oxford, UK.
[23]
Ethics Center, Cincinnati Children's Hospital Medical Center Department of Pediatrics, University of Cincinnati, Cincinnati, Ohio, USA.
[24]
Faculty of Criminology, Criminal Law and Social Law, University of Ghent, Ghent, Belgium.
[25]
Middlesex University School of Law, Middlesex University London, London, UK.
[26]
Research Institute for Ethics and Law, Swansea University, Swansea, UK.
[27]
OUH NHS FT and NIHR Oxford Biomedical Research Centre, Oxford, UK.
[28]
The Health Ethics and Policy Lab, University of Zurich, Zurich, Switzerland.
[29]
King's College London and THIS Institute, University of Cambridge, Cambridge, UK.
[30]
University of Oxford, Oxford, UK.
[31]
DOI
10.1136/medethics-2020-106530
PMID
33023977
发布时间
2024-02-22
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Journal of medical ethics
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