Multidisciplinary approach and psychosocial management of spinal muscular atrophy (SMA).

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第一作者： J,Ropars

第一单位： Department of Pediatrics, CHU Brest, Brest, France; Neuromuscular center, Brest, France; Laboratoire du Traitement de l'Information Médicale, LaTIM INSERM UMR1101, Brest, France; Groupe d'Interet Scientifique Be A Child, Brest, France. Electronic address: ju.ropars@gmail.com.

作者： J,Ropars ^[1] ; S,Peudenier ^[2] ; A,Genot ^[2] ; C,Barnerias ^[3] ; C,Espil ^[4]

作者单位： Department of Pediatrics, CHU Brest, Brest, France; Neuromuscular center, Brest, France; Laboratoire du Traitement de l'Information Médicale, LaTIM INSERM UMR1101, Brest, France; Groupe d'Interet Scientifique Be A Child, Brest, France. Electronic address: ju.ropars@gmail.com. ^[1] Department of Pediatrics, CHU Brest, Brest, France; Neuromuscular center, Brest, France. ^[2] Department of pediatric neurology, Necker Enfants malades, Paris, France; Neuromuscular center, Paris, France. ^[3] Department of pediatric neurology, CHU Bordeaux, Bordeaux, France; Neuromuscular center, Bordeaux, France. ^[4]

关键词 Multidisciplinary management Spinal Muscular Atrophy Transition

主题词综合疗法(Combined Modality Therapy);人类(Humans);病人医疗小组(Patient Care Team);生活质量(Quality of Life);儿童脊髓性肌萎缩(Spinal Muscular Atrophies of Childhood)

DOI 10.1016/S0929-693X(20)30277-3

PMID 33357598

发布时间 2021-09-13

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