Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study.
作者:
Maria Luisa,Scattoni [1]
;
Martina,Micai [2]
;
Antonio,Ciaramella [2]
;
Tommaso,Salvitti [2]
;
Francesca,Fulceri [2]
;
Laura Maria,Fatta [2]
;
Luise,Poustka [3]
;
Robert,Diehm [4]
;
Georgi,Iskrov [5]
;
Rumen,Stefanov [6]
;
Quentin,Guillon [5]
;
Bernadette,Rogé [6]
;
Anthony,Staines [7]
;
Mary Rose,Sweeney [7]
;
Andrew Martin,Boilson [8]
;
Thora,Leósdóttir [8]
;
Evald,Saemundsen [8]
;
Irma,Moilanen [9]
;
Hanna,Ebeling [9]
;
Anneli,Yliherva [10]
;
Mika,Gissler [11]
;
Tarja,Parviainen [10]
;
Pekka,Tani [11]
;
Rafal,Kawa [10]
;
Astrid,Vicente [12]
;
Célia,Rasga [13]
;
Magdalena,Budişteanu [14]
;
Ian,Dale [15]
;
Carol,Povey [16]
;
Noelia,Flores [17]
;
Cristina,Jenaro [18]
;
Maria Luisa,Monroy [19]
;
Patricia García,Primo [19]
;
Tony,Charman [20]
;
Susanne,Cramer [21]
;
Christine Kloster,Warberg [21]
;
Ricardo,Canal-Bedia [22]
;
Manuel,Posada [22]
;
Diana,Schendel [23]
作者单位:
Istituto Superiore Di Sanità, Research Coordination and Support Service, Regina Elena 299, 00161, Roma, Italy. marialuisa.scattoni@iss.it.
[1]
Istituto Superiore Di Sanità, Research Coordination and Support Service, Regina Elena 299, 00161, Roma, Italy.
[2]
Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center Göttingen, Gottingen, Germany.
[3]
Department of Child and Adolescent Psychiatry and Psychotherapy, Medical University of Vienna, Wien, Austria.
[4]
Institute for Rare Diseases, Plovdiv, Bulgaria.
[5]
Department of Social Medicine and Public Health, Faculty of Public Health, Medical University of Plovdiv, Plovdiv Town, Bulgaria.
[6]
Université Toulouse Jean Jaurès, CERPPS, Toulouse, Occitanie, France.
[7]
School of Nursing, Psychotherapy & Community Health, Dublin City University, Dublin, Republic of Ireland.
[8]
The State Diagnostic and Counselling Centre, 200, Kópavogur, Iceland.
[9]
Clinic of Child Psychiatry, University and University Hospital of Oulu, Oulu, Finland.
[10]
Medical Faculty, Oulu University Hospital, Oulu, Finland.
[11]
University of Oulu, Logopedic Child Language Research Center, Oulu, Finland.
[12]
Finnish Institute for Health and Welfare, Helsinki, Uusimaa, Finland.
[13]
University of Turku, Research Centre for Child Psychiatry, Turku, Finland.
[14]
Division of Family Medicine, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden.
[15]
Finnish Association for Autism and Asperger's Syndrome, Helsinki, Uusimaa, Finland.
[16]
Department of Psychiatry, University of Helsinki, Helsinki, Finland.
[17]
Faculty of Psychology, University of Warsaw, Warsaw, Poland.
[18]
Center for Biodiversity, Functional and Integrative Genomics, Instituto Nacional de Saúde Doutor Ricardo Jorge, Lisbon, Portugal.
[19]
Victor Babeş" National Institute for Research and Development in Pathology and Biomedical Sciences, Timisoara, Romania.
[20]
National Autistic Society, The Centre for Autism, London, UK.
[21]
Departamento de Personalidad, Evaluación y Tratamiento Psicológicos, INICO-Instituto Universitario de Integración en la Comunidad University of Salamanca, Salamanca, Spain.
[22]
Departamento de Psicología Evolutiva y de la Educación, INICO-Instituto Universitario de Integración en la Comunidad University of Salamanca, Salamanca, Spain.
[23]
Instituto de Salud Carlos III, Institute of Rare Diseases Research Madrid, Madrid, Spain.
[24]
Institute of Psychiatry, Kings College London, London, UK.
[25]
Department of Public Health, Aarhus University, Aarhus, Denmark.
[26]
Lundbeck Foundation Initiative for Integrative Psychiatric Research, iPSYCH, Aarhus, Denmark.
[27]
Department of Economics and Business, Aarhus University, National Centre for Register-Based Research, Aarhus, Denmark.
[28]
DOI
10.1007/s10803-021-04873-5
PMID
33502713
发布时间
2022-02-18
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Journal of autism and developmental disorders
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