Assessing the health-related management of people with differences of sex development.

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作者： Martina,Jürgensen ^[1] ; Marion,Rapp ^[1] ; Ulla,Döhnert ^[1] ; Fabian-Simon,Frielitz ^[2] ; Faisal,Ahmed ^[3] ; Martine,Cools ^[4] ; Ute,Thyen ^[5] ; Olaf,Hiort ^[6]

作者单位： Division of Paediatric Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University of Lübeck, Lübeck, Germany. ^[1] Institute for Social Medicine and Epidemiology, University of Lübeck, Lübeck, Germany. ^[2] Office for Rare Conditions, University of Glasgow, Glasgow, UK. ^[3] Department of Medicine, Division of Endocrinology and Centre for Endocrine Tumors, Leiden University Medical Centre, Leiden, The Netherlands. ^[4] Division of Paediatric Endocrinology, Department of Paediatrics and Internal Medicine, Ghent University Hospital, Ghent University, Ghent, Belgium. ^[5] Department of Paediatrics and Adolescent Medicine, University of Lübeck, Lübeck, Germany. ^[6] Division of Paediatric Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University of Lübeck, Lübeck, Germany. Olaf.hiort@uksh.de. ^[7]

关键词 Benchmark Differences of sex development Health care system Nonbinary concept of sex Quality indicator

主题词性发育障碍(Disorders of Sex Development);人类(Humans);生活质量(Quality of Life);少见病(Rare Diseases);参考标准(Reference Standards);性发育(Sexual Development)

DOI 10.1007/s12020-021-02627-y

PMID 33515437

发布时间 2021-07-31

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准确一般字义偏差语意偏离译文作用小提交