作者:
Marni B,Jacobs [1]
;
Meredoith K,James [2]
;
Linda P,Lowes [3]
;
Lindsay N,Alfano [4]
;
Michelle,Eagle [4]
;
Robert,Muni Lofra [3]
;
Ursula,Moore [3]
;
Jia,Feng [3]
;
Laura E,Rufibach [1]
;
Kristy,Rose [5]
;
Tina,Duong [6]
;
Luca,Bello [7]
;
Irene,Pedrosa-Hernández [8]
;
Scott,Holsten [9]
;
Chikako,Sakamoto [10]
;
Aurélie,Canal [11]
;
Nieves,Sanchez-Aguilera Práxedes [12]
;
Simone,Thiele [13]
;
Catherine,Siener [14]
;
Bruno,Vandevelde [15]
;
Brittney,DeWolf [16]
;
Elke,Maron [17]
;
Michela,Guglieri [7]
;
Jean-Yves,Hogrel [18]
;
Andrew M,Blamire [3]
;
Pierre G,Carlier [13]
;
Simone,Spuler [19]
;
John W,Day [20]
;
Kristi J,Jones [21]
;
Diana X,Bharucha-Goebel [22]
;
Emmanuelle,Salort-Campana [6]
;
Alan,Pestronk [23]
;
Maggie C,Walter [24]
;
Carmen,Paradas [17]
;
Tanya,Stojkovic [16]
;
Madoka,Mori-Yoshimura [15]
;
Elena,Bravver [25]
;
Jordi,Díaz-Manera [13]
;
Elena,Pegoraro [26]
;
Jerry R,Mendell [11]
;
Jain COS Consortium [27]
;
Anna G,Mayhew [28]
;
Volker,Straub [9]
作者单位:
Center for Translational Science, Division of Biostatistics and Study Methodology, Children's National Health System, Washington, DC.
[1]
Pediatrics, Epidemiology, and Biostatistics, George Washington University, Washington, DC.
[2]
The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Central Parkway, Newcastle upon Tyne, UK.
[3]
The Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, OH.
[4]
The Jain Foundation, Seattle, WA.
[5]
The Children's Hospital at Westmead, The University of Sydney, Sydney, Australia.
[6]
Cooperative International Neuromuscular Research Group (CINRG), Children's National Health System, Washington, DC.
[7]
Lucile Salter Packard Children's Hospital at Stanford, Palo Alto, CA.
[8]
Department of Neuroscience, University of Padova, Padova, Italy.
[9]
Physical Medicine and Rehabilitation, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
[10]
Neuroscience Institute, Carolinas Neuromuscular/ALS-MDA Center, Carolinas HealthCare System, Charlotte, NC.
[11]
Department of Physical Rehabilitation, National Center Hospital, National Center of Neurology and Psychiatry, Tokyo, Japan.
[12]
Institut de Myologie, AP-HP, GH Pitié-Salpêtrière, Paris, France.
[13]
Neurorehabilitation Unit, Rehabilitation Hospital Universitario Virgen del Rocío, Sevilla, Spain.
[14]
Friedrich-Baur-Institute, Department of Neurology, Ludwig-Maximilians University of Munich, Munich, Germany.
[15]
Department of Neurology Washington University School of Medicine, St. Louis, MO.
[16]
Service des Maladies Neuromusculaire et de la SLA, Hôpital de La Timone, Marseille, France.
[17]
ELAN-PHYSIO, Praxis für Physiotherapie Maron, Berlin, Germany.
[18]
Magnetic Resonance Centre, Institute for Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK.
[19]
AIM & CEA NMR Laboratory, Institute of Myology, Pitié-Salpêtrière University Hospital, Paris, France.
[20]
Charite Muscle Research Unit, Experimental and Clinical Research Center, a joint cooperation of the Charité Medical Faculty and the Max Delbrück Center for Molecular Medicine, Berlin, Germany.
[21]
Department of Neurology and Neurological Sciences, Stanford University School of Medicine, Stanford, CA.
[22]
Department of Neurology Children's National Health System, Washington, DC.
[23]
National Institutes of Health (NINDS), Bethesda, MD.
[24]
Neuromuscular Unit, Department of Neurology, Hospital U. Virgen del Rocío/Instituto de Biomedicina de Sevilla, Sevilla, Spain.
[25]
Department of Neurology, National Center Hospital, National Center of Neurology and Psychiatry, Tokyo, Japan.
[26]
Centro de Investigación Biomédica en Red en Enfermedades Raras (CIBERER), Barcelona, Spain.
[27]
Neuromuscular Disorders Unit, Neurology Department, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
[28]
主题词
青少年(Adolescent);成年人(Adult);发病年龄(Age of Onset);老年人(Aged);老年人, 80以上(Aged, 80 and over);儿童(Child);临床试验(主题)(Clinical Trials as Topic);队列研究(Cohort Studies);疾病恶化(Disease Progression);女(雌)性(Female);人类(Humans);纵向研究(Longitudinal Studies);男(雄)性(Male);中年人(Middle Aged);肌营养不良, 肢带型(Muscular Dystrophies, Limb-Girdle);心理测定学(Psychometrics);治疗结果(Treatment Outcome);青年人(Young Adult)
DOI
10.1002/ana.26044
PMID
33576057
发布时间
2021-05-26
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Annals of neurology
Annals of neurology
967-978页
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