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Preparing accessible and understandable clinical research participant information leaflets and consent forms: a set of guidelines from an expert consensus conference.

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第一作者： Eleanor,Coleman

第一单位： School of Medicine, University College Dublin, Dublin, Ireland and Health Research Board-Trials Methodology Research Network, National University of Ireland, Galway, Ireland.

作者： Eleanor,Coleman ^[1] ; Lydia,O'Sullivan ^[2] ; Rachel,Crowley ^[3] ; Moira,Hanbidge ^[4] ; Seán,Driver ^[5] ; Thilo,Kroll ^[6] ; Aoife,Kelly ^[7] ; Alistair,Nichol ^[8] ; Orlaith,McCarthy ^[9] ; Prasanth,Sukumar ^[7] ; Peter,Doran ^[10]

作者单位： School of Medicine, University College Dublin, Dublin, Ireland and Health Research Board-Trials Methodology Research Network, National University of Ireland, Galway, Ireland. ^[1] School of Medicine and School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland and Health Research Board-Trials Methodology Research Network, National University of Ireland, Galway, Ireland. lydia.osullivan@ucd.ie.;Postal Address: Clinical Research Centre, Catherine McCauley Education and Research Centre, Dublin, Ireland. lydia.osullivan@ucd.ie. ^[2] School of Medicine, University College Dublin and Saint Vincent's University Hospital Medical Research and Ethics Committee, Dublin, Ireland. ^[3] Patient advocate, and graduate of the Irish Platform for Patients' Organisations, Science and Industry (IPPOSI) Patient Education Programme in Health Innovation, Dublin, Ireland. ^[4] National Adult Literacy Agency, Dublin, Ireland. ^[5] Centre for Interdisciplinary Research, Education and Innovation in Health Systems, School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland. ^[6] Clinical Research Centre, School of Medicine, University College Dublin, Dublin, Ireland. ^[7] School of Medicine, University College Dublin, Dublin, Ireland; Clinical Research Centre, School of Medicine, University College Dublin, Dublin, Ireland; Australian and New Zealand Intensive Care Research Centre, Monash University, Melbourne, Australia.;Department of Intensive Care, Alfred Hospital, Melbourne, Australia. ^[8] Saint Vincent's University Hospital Research Ethics Committee, Dublin, Ireland. ^[9] School of Medicine, University College Dublin, Dublin, Ireland; Clinical Research Centre, School of Medicine, University College Dublin, Dublin, Ireland.;Health Research Board-Trials Methodology Research Network, National University of Ireland, Galway, Ireland. ^[10]

关键词 Clinical research Clinical trials Informed consent Participant information leaflets Patient and public involvement Patient information leaflets

DOI 10.1186/s40900-021-00265-2

PMID 34006326

发布时间 2021-05-22

基金项目

HRB-TMRN-2017-1/HRBI_/Health Research Board/Ireland

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Preparing accessible and understandable clinical research participant information leaflets and consent forms: a set of guidelines from an expert consensus conference.

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Preparing accessible and understandable clinical research participant information leaflets and consent forms: a set of guidelines from an expert consensus conference.

Research involvement and engagement

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Research involvement and engagement

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