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Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff.

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第一作者: C,Atkin
第一单位: PIONEER Hub in Acute Care, Institute of Inflammation and Ageing, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK.
作者: C,Atkin [1] ; B,Crosby [2] ; K,Dunn [3] ; G,Price [4] ; E,Marston [5] ; C,Crawford [6] ; M,O'Hara [7] ; C,Morgan [8] ; M,Levermore [9] ; S,Gallier [10] ; S,Modhwadia [11] ; J,Attwood [12] ; S,Perks [12] ; A K,Denniston [13] ; G,Gkoutos [14] ; R,Dormer [15] ; A,Rosser [16] ; A,Ignatowicz [17] ; H,Fanning [6] ; E,Sapey [18] ; PIONEER Data Hub
作者单位: PIONEER Hub in Acute Care, Institute of Inflammation and Ageing, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [1] PIONEER HDR-UK Data Hub in Acute Care, Institute of Inflammation and Ageing, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [2] HDR-UK Midlands Physical Site, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [3] Patient Involvement and Engagement Lead, PIONEER, London, UK. [4] Research Support Services, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK. [5] Research and Development, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [6] University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [7] Public author, B15 2GW, Birmingham, UK. [8] Medical Devices Technology International Limited (MDTi), The KaCe Building, Victoria Passage, Wolverhampton, West Midlands, WV1 4LG, UK.;Health, Education and Life Sciences, Birmingham City University, Birmingham, West Midlands, UK. [9] Technical Director, PIONEER HDR-UK Data Hub in Acute Care, Institute of Inflammation and Ageing, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [10] PIONEER HDR-UK Data Hub in Acute Care, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [11] Informatics, University Hospital Birmingham NHS Foundation Trust, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [12] Director of INSIGHT - the Health Data Research Hub for Eye Health, University Hospitals Birmingham NHS Foundation Trust, Edgbaston, Birmingham, B15 2GW, UK.;Centre for Regulatory Science and Innovation, Birmingham Health Partners, Birmingham, B15 2GW, UK.;NIHR Biomedical Research Centre (Moorfields Eye Hospital NHS Foundation Trust and University College London), Birmingham, UK. [13] Alan Turing Institute, HDR-UK Associated Researcher, Institute of Cancer and Genomic Sciences, University of Birmingham, Edgbaston, Birmingham, B15 2GW, UK. [14] Insignia Medical Systems Limited, Paterson House, Hatch Warren Lane, Basingstoke, Hampshire, RG22 4RA, UK. [15] West Midlands Ambulance Service Foundation Trust, Millennium Point, Waterfront Business Park, Waterfront Way, Brierley Hill, West Midlands, DY5 1LX, UK. [16] Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, B15 2TT, UK. [17] PIONEER, HDR-UK Health Data Research Hub in Acute Care, Birmingham Acute Care Research Group, Institute of Inflammation and Ageing, University of Birmingham, Birmingham, B15 2GW, UK. e.sapey@bham.ac.uk.;Department of Acute Medicine, University Hospitals Birmingham NHS Foundation Trust, Birmingham, B15 2GW, UK. e.sapey@bham.ac.uk.;NIHR CRF, University Hospitals Birmingham NHS Foundation Trust, Birmingham, B15 2GW, UK. e.sapey@bham.ac.uk. [18]
DOI 10.1186/s40900-021-00281-2
PMID 34127076
发布时间 2025-05-30
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Research involvement and engagement

Research involvement and engagement

2021年7卷1期

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