Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities.

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第一作者： Erin,Turbitt

第一单位： Lecturer in the Graduate School of Health at the University of Technology Sydney.

作者： Erin,Turbitt ^[1] ; Ainsley J,Newson ^[2] ; Barbara B,Biesecker ^[3] ; Benjamin S,Wilfond ^[4]

作者单位： Lecturer in the Graduate School of Health at the University of Technology Sydney. ^[1] Professor of bioethics at Sydney Health Ethics in the Faculty of Medicine and Health at the University of Sydney. ^[2] Distinguished Fellow at RTI International in Washington DC. ^[3] Professor of pediatrics at the University of Washington and Seattle Children's Research Institute. ^[4]

关键词 clinical trials decision-making for children and adolescents enhanced consent human research ethics informed consent neurodevelopmental disability pediatrics personhood research enrollment research equity

主题词儿童(Child);决策(Decision Making);家庭(Family);人类(Humans);双亲(Parents)

DOI 10.1002/eahr.500097

PMID 34196500

发布时间 2021-10-25

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Ethics & human research

2021年43卷4期

27-36页

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Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities.

Ethics & human research

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Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities.

Ethics & human research

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Ethics & human research

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