Mobile app requirements for patients with rare liver diseases: A single center survey for the ERN RARE-LIVER‬‬‬.

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作者： Darius F,Rüther ^[1] ; Marcial,Sebode ^[2] ; Ansgar W,Lohse ^[2] ; Sarah,Wernicke ^[3] ; Erwin,Böttinger ^[3] ; Christian,Casar ^[2] ; Felix,Braun ^[2] ; Christoph,Schramm ^[4]

作者单位： I. Department of Internal Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany; European Reference Network on Hepatological Diseases (ERN RARE-LIVER); Digital Health Center, Hasso Plattner Institute, Potsdam, Germany. Electronic address: d.ruether@uke.de. ^[1] I. Department of Internal Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany; European Reference Network on Hepatological Diseases (ERN RARE-LIVER). ^[2] Digital Health Center, Hasso Plattner Institute, Potsdam, Germany. ^[3] I. Department of Internal Medicine, University Medical Center Hamburg-Eppendorf, Hamburg, Germany; European Reference Network on Hepatological Diseases (ERN RARE-LIVER); Martin Zeitz Center for Rare Diseases, University Medical Center Hamburg-Eppendorf, Hamburg, Germany. ^[4]

关键词 Autoimmune hepatitis European reference networks Mobile applications Patient reported outcome measures Primary biliary cholangitis Primary sclerosing cholangitis

主题词成年人(Adult);人类(Humans);肝疾病(Liver Diseases);少见病(Rare Diseases)

DOI 10.1016/j.clinre.2021.101760

PMID 34325014

发布时间 2022-02-24

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