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Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.

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第一作者: Hadley Stevens,Smith
第一单位: Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. hadley.smith@bcm.edu.
作者单位: Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. hadley.smith@bcm.edu. [1] Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.;Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA. [2] Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. [3] San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, USA. [4] Herbert Wertheim School of Public Health, University of California San Diego, San Diego, CA, USA. [5] Department of Social and Behavioral Sciences, University of California, San Francisco, CA, USA. [6] RTI International, Washington, DC, USA. [7] Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY, USA. [8] Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA. [9] Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA.;Icahn School of Medicine at Mount Sinai, Institute for Health Equity Research, New York, NY, USA. [10] Division of Epidemiology, Department of Internal Medicine, University of Utah, Salt Lake City, UT, USA. [11] Program in Bioethics, University of California, San Francisco, CA, USA. [12] Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute and Hospital, Seattle, WA, USA.;Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA. [13] Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.;Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL, USA. [14] Palliative Care and Resilience Lab, Seattle Children's, Seattle, WA, USA. [15] Department of Social Medicine, UNC-Chapel Hill School of Medicine, Chapel Hill, NC, USA. [16]
DOI 10.1007/s40271-021-00558-4
PMID 34658003
发布时间 2025-01-15
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