Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development.

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第一作者： Hadley Stevens,Smith

第一单位： Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. hadley.smith@bcm.edu.

作者： Hadley Stevens,Smith ^[1] ; Stephanie R,Morain ^[2] ; Jill Oliver,Robinson ^[3] ; Isabel,Canfield ^[3] ; Janet,Malek ^[3] ; Caryn Kseniya,Rubanovich ^[4] ; Cinnamon S,Bloss ^[5] ; Sara L,Ackerman ^[6] ; Barbara,Biesecker ^[7] ; Kyle B,Brothers ^[8] ; Crispin N,Goytia ^[9] ; Carol R,Horowitz ^[10] ; Sara J,Knight ^[11] ; Barbara,Koenig ^[12] ; Stephanie A,Kraft ^[13] ; Simon,Outram ^[12] ; Christine,Rini ^[14] ; Kelly J,Shipman ^[15] ; Margaret,Waltz ^[16] ; Benjamin,Wilfond ^[13] ; Amy L,McGuire ^[3]

作者单位： Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. hadley.smith@bcm.edu. ^[1] Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.;Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA. ^[2] Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. ^[3] San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, USA. ^[4] Herbert Wertheim School of Public Health, University of California San Diego, San Diego, CA, USA. ^[5] Department of Social and Behavioral Sciences, University of California, San Francisco, CA, USA. ^[6] RTI International, Washington, DC, USA. ^[7] Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY, USA. ^[8] Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA. ^[9] Department of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, USA.;Icahn School of Medicine at Mount Sinai, Institute for Health Equity Research, New York, NY, USA. ^[10] Division of Epidemiology, Department of Internal Medicine, University of Utah, Salt Lake City, UT, USA. ^[11] Program in Bioethics, University of California, San Francisco, CA, USA. ^[12] Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute and Hospital, Seattle, WA, USA.;Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle, WA, USA. ^[13] Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.;Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL, USA. ^[14] Palliative Care and Resilience Lab, Seattle Children's, Seattle, WA, USA. ^[15] Department of Social Medicine, UNC-Chapel Hill School of Medicine, Chapel Hill, NC, USA. ^[16]