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Do research participants share genomic screening results with family members?

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第一作者: Julia,Wynn
第一单位: Department of Pediatrics, Columbia University Irving Medical Center, New York, NY, USA.
作者单位: Department of Pediatrics, Columbia University Irving Medical Center, New York, NY, USA. [1] Department of Medicine, Columbia University Irving Medical Center, New York, NY, USA. [2] Department of Epidemiology, Columbia University Mailman School of Public Health, New York, NY, USA. [3] Department of Pediatrics, School of Medicine, University of Colorado, Aurora, CO, USA. [4] Department of Psychiatry, Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavior Genetics, Columbia University Irving Medical Center, New York, NY, USA. [5] Center for Biomedical Ethics and Society and Department of Pediatrics, Vanderbilt University Medical Center, Nashville, TN, USA. [6] Department of Population Medicine, Precision Medicine Translational Research (PROMoTeR) Center, Harvard Pilgrim Health Care Institute, Boston, MA, USA. [7] Department of Population Medicine, Harvard Medical School, Boston, MA, USA. [8] Department of Biomedical Informatics, Columbia University Irving Medical Center, New York, NY, USA. [9] Broad Institute of MIT and Harvard, Cambridge, MA, USA. [10] Division of Genetics, Department of Medicine, Brigham and Women's Hospital, Boston, MA, USA. [11] Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA, USA. [12] Center for Genetic Medicine, Northwestern University, Chicago, IL, USA. [13] Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN, USA. [14] Genetic Services and Kaiser Permanente Washington Health Research Institute, Kaiser Permanente of Washington, Seattle, WA, USA. [15] Divisions of Human Genetics and Patient Services, Children's Hospital Medical Center, Cincinnati, OH, USA. [16] Biomedical Ethics Program, Mayo Clinic, Rochester, MN, USA. [17] Genomic Medicine Institute, Geisinger, Danville, PA, USA. [18] Division of Genetic Medicine, Department of Medicine, and Vanderbilt-Ingram Cancer Center, Vanderbilt University Medical Center, Nashville, TN, USA. [19] Division of Genetics and Genomics and the Manton Center for Orphan Diseases Research, Boston Children's Hospital, Boston, MA, USA. [20] Department of Pediatrics, Harvard Medical School, Boston, MA, USA. [21]
DOI 10.1002/jgc4.1511
PMID 34665896
发布时间 2022-10-05
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Journal of genetic counseling

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