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Return of individual research results from genomic research: A systematic review of stakeholder perspectives.

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第一作者: Danya F,Vears
第一单位: Melbourne Law School, University of Melbourne, Carlton, Australia.;Murdoch Children's Research Institute, The Royal Children's Hospital, Parkville, Australia.;Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.;Leuven Institute for Human Genetics and Society, Leuven, Belgium.
作者单位: Melbourne Law School, University of Melbourne, Carlton, Australia.;Murdoch Children's Research Institute, The Royal Children's Hospital, Parkville, Australia.;Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.;Leuven Institute for Human Genetics and Society, Leuven, Belgium. [1] Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University, Newcastle, United Kingdom.;Department of Community Health Sciences, O'Brien Institute for Public Health, University of Calgary, Calgary, Canada. [2] Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University, Newcastle, United Kingdom. [3] School of Art, Media and American Studies, University of East Anglia, Norwich, United Kingdom. [4] Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University, Newcastle, United Kingdom.;Ada Lovelace Institute, London, United Kingdom. [5] Department of Genetics and Bioinformatics, Norwegian Institute of Public Health, Oslo, Norway. [6] Newcastle upon Tyne NHS Foundation Hospitals Trust, Northern Genetics Service, Centre for Life, Newcastle, United Kingdom.;Population Health Sciences Institute, Newcastle University, Newcastle, United Kingdom. [7] McGill Centre for Integrative Neuroscience, Montreal Neurological Institute, Department of Neurology & Neurosurgery, McGill University, Montreal, Canada. [8] Murdoch Children's Research Institute, The Royal Children's Hospital, Parkville, Australia.;Department of Paediatrics, Faculty of Medicine Dentistry & Health Sciences, The University of Melbourne, Parkville, Australia.;Walter and Eliza Hall Institute of Medical Research, Parkville, Australia. [9] Harvard Medical School, Boston, Massachusetts, United States of America.;Mass General Brigham, Boston, Massachusetts, United States of America.;Broad Institute, Boston, Massachusetts, United States of America.;Ariadne Labs, Boston, Massachusetts, United States of America. [10] PHG Foundation, University of Cambridge, Cambridge, United Kingdom. [11] Cancer Division, Garvan Institute of Medical Research, Sydney, Australia.;International Cancer Genome Consortium, University of Glasgow, Glasgow, United Kingdom. [12] Centre of Genomics and Policy, McGill University, Montreal, Canada. [13] Northumbria University, Newcastle, United Kingdom. [14] Genomics England, Queen Mary University of London, London, United Kingdom.;Society and Ethics Research Group, Connecting Science, Wellcome Genome Campus, Cambridge, United Kingdom. [15] National Center for Tumour Diseases (NCT), Section of Translational Medical Ethics, University of Heidelberg, Heidelberg, Germany. [16] University of Glasgow, Glasgow, United Kingdom.;Newcastle University, Newcastle, United Kingdom. [17]
DOI 10.1371/journal.pone.0258646
PMID 34748551
发布时间 2021-12-24
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