Assessing the Relationship of Patient Reported Outcome Measures With Functional Status in Dysferlinopathy: A Rasch Analysis Approach.
第一作者:
Anna G,Mayhew
第一单位:
The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
作者:
Anna G,Mayhew [1]
;
Meredith K,James [1]
;
Ursula,Moore [1]
;
Helen,Sutherland [1]
;
Marni,Jacobs [2]
;
Jia,Feng [3]
;
Linda Pax,Lowes [4]
;
Lindsay N,Alfano [4]
;
Robert,Muni Lofra [1]
;
Laura E,Rufibach [5]
;
Kristy,Rose [6]
;
Tina,Duong [7]
;
Luca,Bello [8]
;
Irene,Pedrosa-Hernández [9]
;
Scott,Holsten [10]
;
Chikako,Sakamoto [11]
;
Aurélie,Canal [12]
;
Nieves,Sánchez-Aguilera Práxedes [13]
;
Simone,Thiele [14]
;
Catherine,Siener [15]
;
Bruno,Vandevelde [16]
;
Brittney,DeWolf [17]
;
Elke,Maron [18]
;
Heather,Gordish-Dressman [2]
;
Heather,Hilsden [1]
;
Michela,Guglieri [1]
;
Jean-Yves,Hogrel [12]
;
Andrew M,Blamire [19]
;
Pierre G,Carlier [20]
;
Simone,Spuler [21]
;
John W,Day [22]
;
Kristi J,Jones [6]
;
Diana X,Bharucha-Goebel [23]
;
Emmanuelle,Salort-Campana [16]
;
Alan,Pestronk [15]
;
Maggie C,Walter [14]
;
Carmen,Paradas [24]
;
Tanya,Stojkovic [12]
;
Madoka,Mori-Yoshimura [25]
;
Elena,Bravver [10]
;
Jordi,Díaz-Manera [26]
;
Elena,Pegoraro [8]
;
Jerry R,Mendell [4]
;
Volker,Straub [1]
作者单位:
The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
[1]
Center for Translational Science, Division of Biostatistics and Study Methodology, Children's National Health System, Washington, DC, United States.;Pediatrics, Epidemiology and Biostatistics, George Washington University, Washington, DC, United States.
[2]
Center for Translational Science, Division of Biostatistics and Study Methodology, Children's National Health System, Washington, DC, United States.
[3]
The Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, OH, United States.
[4]
The Jain Foundation, Seattle, WA, United States.
[5]
The Children's Hospital at Westmead, The University of Sydney, Sydney, NSW, Australia.
[6]
Cooperative International Neuromuscular Research Group (CINRG), Children's National Health System, Washington, DC, United States.;Lucile Salter Packard Children's Hospital at Stanford, Neurology, Palo Alto, CA, United States.
[7]
Department of Neuroscience, University of Padova, Padua, Italy.
[8]
Physical Medicine and Rehabilitation, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
[9]
Neuroscience Institute, Carolinas Neuromuscular/ALS-MDA Center, Carolinas HealthCare System, Charlotte, NC, United States.
[10]
Department of Physical Rehabilitation, National Center Hospital, National Center of Neurology and Psychiatry Tokyo, Tokyo, Japan.
[11]
Institut de Myologie, AP-HP, GH Pitié-Salpêtrière, Paris, France.
[12]
Neurorehabilitation Unit, Rehabilitation Hospital Universitario Virgen del Rocío Sevilla, Seville, Spain.
[13]
Department of Neurology, Friedrich-Baur-Institute, Ludwig-Maximilians-University of Munich, Munich, Germany.
[14]
Department of Neurology, Washington University School of Medicine, St. Louis, MO, United States.
[15]
Service des Maladies Neuromusculaire et de la SLA, Hôpital de La Timone, Marseille, France.
[16]
Cooperative International Neuromuscular Research Group (CINRG), Children's National Health System, Washington, DC, United States.
[17]
ELAN-PHYSIO, Praxis für Physiotherapie Maron, Berlin, Germany.
[18]
Magnetic Resonance Centre, Institute for Cellular Medicine, Newcastle University, Newcastle upon Tyne, United Kingdom.
[19]
AIM & CEA NMR Laboratory, Institute of Myology, Pitié-Salpêtrière University Hospital, Paris, France.
[20]
Charite Muscle Research Unit, Experimental and Clinical Research Center, A Joint Cooperation of the Charité Medical Faculty and the Max Delbrück Center for Molecular Medicine, Berlin, Germany.
[21]
Department of Neurology and Neurological Sciences, Stanford University School of Medicine, Stanford, CA, United States.
[22]
Department of Neurology Children's National Health System, Washington, DC, United States.;National Institutes of Health (NINDS), Bethesda, MD, United States.
[23]
Neuromuscular Unit, Department of Neurology, Hospital U. Virgen del Rocío/Instituto de Biomedicina de Sevilla, Sevilla, Spain.
[24]
Department of Neurology, National Center Hospital, National Center of Neurology and Psychiatry Tokyo, Tokyo, Japan.
[25]
Centro de Investigación Biomédica en Red en Enfermedades Raras (CIBERER), Barcelona, Spain.;Neuromuscular Disorders Unit, Neurology Department, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
[26]
DOI
10.3389/fneur.2022.828525
PMID
35359643
发布时间
2022-04-02
- 浏览0
Frontiers in neurology
Frontiers in neurology
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