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How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort.

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第一作者： T Katrien J,Groenhof

第一单位： Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.

作者： T Katrien J,Groenhof ^[1] ; Menno,Mostert ^[1] ; Nathan C,Lea ^[2] ; Saskia,Haitjema ^[3] ; Martine C,de Vries ^[4] ; Wouter B,van Dijk ^[1] ; Diederick E,Grobbee ^[1] ; Folkert W,Asselbergs ^[5] ; Michiel L,Bots ^[1] ; Rieke,van der Graaf ^[6]

作者单位： Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands. ^[1] Institute of Cardiovascular Science, Faculty of Population Health Sciences, University College London, London, United Kingdom. ^[2] Laboratory of Clinical Chemistry and Haematology, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands. ^[3] Department of Medical Ethics and Health Law, Leiden University Medical Center, Leiden, The Netherlands. ^[4] Institute of Cardiovascular Science, Faculty of Population Health Sciences, University College London, London, United Kingdom; Department of Cardiology, Division Heart & Lungs, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands; Health Data Research UK, Institute of Health Informatics, University College London, London, United Kingdom. ^[5] Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands. Electronic address: r.vandergraaf@umcutrecht.nl. ^[6]

医学主题词人类(Humans);知情同意(Informed Consent);队列研究(Cohort Studies)

DOI 10.1016/j.jclinepi.2022.04.025

PMID 35504525

发布时间 2022-11-22

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准确一般字义偏差语意偏离译文作用小提交