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Public Deliberation Process on Patient Perspectives on Health Information Sharing: Evaluative Descriptive Study.

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第一作者： Minakshi,Raj

第一单位： Department of Kinesiology and Community Health, University of Illinois at Urbana Champaign, Champaign, IL, United States.

作者： Minakshi,Raj ^[1] ; Kerry,Ryan ^[2] ; Paige,Nong ^[3] ; Karen,Calhoun ^[4] ; M Grace,Trinidad ^[5] ; Raymond,De Vries ^[6] ; Melissa,Creary ^[3] ; Kayte,Spector-Bagdady ^[7] ; Sharon L R,Kardia ^[3] ; Jodyn,Platt ^[6]

作者单位： Department of Kinesiology and Community Health, University of Illinois at Urbana Champaign, Champaign, IL, United States. ^[1] Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI, United States. ^[2] School of Public Health, University of Michigan, Ann Arbor, MI, United States. ^[3] Michigan Institute for Clinical & Health Research, Ann Arbor, MI, United States. ^[4] National Hemophilia Program Coordinating Center, Ann Arbor, MI, United States. ^[5] Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI, United States.;Department of Learning Health Sciences, University of Michigan, Ann Arbor, MI, United States. ^[6] Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI, United States.;Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI, United States. ^[7]

关键词 cancer data sharing health information health information exchange information oncology patient engagement personalized medicine policy precision oncology public deliberation public preference sharing

DOI 10.2196/37793

PMID 36112409

发布时间 2024-05-15

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