Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study.

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第一作者： Louis,Soussand

第一单位： Banque Nationale de Données Maladies Rares, DSI-Innovation and Données, APHP, Paris, France.

作者： Louis,Soussand ^[1] ; Mathieu,Kuchenbuch ^[2] ; Claude,Messiaen ^[3] ; Arnaud,Sandrin ^[1] ; Anne-Sophie,Jannot ^[1] ; Rima,Nabbout ^[1]

作者单位： Banque Nationale de Données Maladies Rares, DSI-Innovation and Données, APHP, Paris, France. ^[1] Department of Pediatric Neurology, Reference Centre for Rare Epilepsies, Hôpital Necker-Enfants Malades, 149 Rue de Sèvres, 75015, Paris, France. ^[2] Laboratory of Translational Research for Neurological Disorders, INSERM-MR1163, Imagine Institute, Paris, France. ^[3] AP-HP. Centre - Université de Paris Cité, Paris, France. ^[4] HeKA Centre de Recherche des Cordeliers Inserm, INRIA, Paris, France. ^[5] Department of Pediatric Neurology, Reference Centre for Rare Epilepsies, Hôpital Necker-Enfants Malades, 149 Rue de Sèvres, 75015, Paris, France. rima.nabbout@aphp.fr. ^[6] Laboratory of Translational Research for Neurological Disorders, INSERM-MR1163, Imagine Institute, Paris, France. rima.nabbout@aphp.fr. ^[7] AP-HP. Centre - Université de Paris Cité, Paris, France. rima.nabbout@aphp.fr. ^[8]

关键词 COVID-19 Health policy National health program National health registry Rare diseases Telehealth