A FHIR has been lit on gICS: facilitating the standardised exchange of informed consent in a large network of university medicine.

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第一作者： Martin,Bialke

第一单位： Institute for Community Medicine, Department Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstr. 1-2, 17475, Greifswald, Germany. martin.bialke@uni-greifswald.de.

作者： Martin,Bialke ^[1] ; Lars,Geidel ^[2] ; Christopher,Hampf ^[2] ; Arne,Blumentritt ^[2] ; Peter,Penndorf ^[2] ; Ronny,Schuldt ^[2] ; Frank-Michael,Moser ^[2] ; Stefan,Lang ^[3] ; Patrick,Werner ^[4] ; Sebastian,Stäubert ^[5] ; Hauke,Hund ^[6] ; Fady,Albashiti ^[7] ; Jürgen,Gührer ^[8] ; Hans-Ulrich,Prokosch ^[9] ; Thomas,Bahls ^[10] ; Wolfgang,Hoffmann ^[2]

作者单位： Institute for Community Medicine, Department Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstr. 1-2, 17475, Greifswald, Germany. martin.bialke@uni-greifswald.de. ^[1] Institute for Community Medicine, Department Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstr. 1-2, 17475, Greifswald, Germany. ^[2] Gefyra GmbH, Otto-Hahn-Str. 9, 48161, Münster, Germany. ^[3] MOLIT Institute Heilbronn, Im Zukunftspark 10, 74076, Heilbronn, Germany. ^[4] Institute for Medical Informatics, Statistics and Epidemiology (IMISE), Leipzig University, Härtelstr. 16-18, 04107, Leipzig, Germany. ^[5] SMITH Consortium of the German Medical Informatics Initiative, Leipzig, Germany. ^[6] GECKO Institute, Heilbronn University of Applied Sciences, Max-Planck-Str. 39, 74081, Heilbronn, Germany. ^[7] Medical Data Integration Center (MeDIC LMU), Hospital of the Ludwig-Maximilian-University (LMU), Marchioninistr. 15, 81377, Munich, Germany. ^[8] Tekaris GmbH (Partner of MeDIC LMU), Elsenheimerstraße 53, 80687, Munich, Germany. ^[9] Chair of Medical Informatics, Friedrich-Alexander-Universität Erlangen-Nürnberg, Wetterkreuz 15, 91058, Erlangen, Germany. ^[10]

关键词 Consent management FHIR Informed Consent Medical data management Patient rights

主题词人类(Humans);电子健康病历(Electronic Health Records);软件(Software);知情同意(Informed Consent)

DOI 10.1186/s12911-022-02081-4

PMID 36536405

发布时间 2023-03-24

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