作者：
Vanessa R,Byams [1]
;
Judith R,Baker [2]
;
Cindy,Bailey [3]
;
Nathan T,Connell [4]
;
Melissa S,Creary [5]
;
Randall G,Curtis [6]
;
Alexis,Dinno [7]
;
Christine J,Guelcher [8]
;
Michelle,Kim [9]
;
Roshni,Kulkarni [10]
;
Susan,Lattimore [11]
;
Keri L,Norris [12]
;
Lucy,Ramirez [13]
;
Mark W,Skinner [14]
;
Susan,Symington [15]
;
Patricia,Tobase [16]
;
Esmeralda,Vázquez [17]
;
Beth B,Warren [18]
;
Emily,Wheat [19]
;
Tyler W,Buckner [20]
作者单位：
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.
[1]
Center for Inherited Blood Disorders, Western States Regional Hemophilia Network, Orange, California, USA.
[2]
Los Angeles Orthopaedic Hemophilia Treatment Center, Los Angeles, California, USA.
[3]
Boston Hemophilia Center, Division of Hematology, Department of Medicine, Brigham and Women's Hospital, Boston, Massachusetts, USA.
[4]
Department of Medicine, Harvard Medical School, Boston, Massachusetts, USA.
[5]
American Thrombosis and Hemostasis Network, Rochester, New York, USA.
[6]
Department of Health Management and Policy, University of Michigan School of Public Health, Ann Arbor, Michigan, USA.
[7]
Hematology Utilization Group Study (HUGS), University of Southern California, Los Angeles, California, USA.
[8]
Patient Reported Outcomes, Burdens and Experiences (PROBE), Washington, DC, USA.
[9]
The Oregon Health & Science University-Portland State University School of Public Health, Portland, Oregon, USA.
[10]
Hemostasis and Thrombosis Program, Children's National Hospital, Washington, DC, USA.
[11]
Hemophilia Foundation of Southern California, Pasadena, California, USA.
[12]
MSU Center of Bleeding and Clotting Disorders, Department Pediatrics and Human Development, Michigan State University, East Lansing, Michigan, USA.
[13]
Department of Pediatrics, Oregon Health & Science University, Portland, Oregon, USA.
[14]
Mountain States Regional Hemophilia Network, Portland, Oregon, USA.
[15]
National Hemophilia Foundation, New York, New York, USA.
[16]
Rush Hemophilia and Thrombophilia Treatment Center, Rush University Medical Center, Chicago, Illinois, USA.
[17]
Institute for Policy Advancement, Washington, DC, USA.
[18]
Health Sciences, McMaster University, Hamilton, Ontario, Canada.
[19]
Genentech, Phoenix, Arizona, USA.
[20]
University of California San Francisco Hemophilia Treatment Center, University of California San Francisco, San Francisco, California, USA.
[21]
Patient Author, Lived Experience Expert, Chicago, Illinois, USA.
[22]
Department of Pediatrics, University of Colorado School of Medicine, Aurora, Colorado, USA.
[23]
Hemophilia and Thrombosis Center, Division of Hematology, University of Colorado School of Medicine, Aurora, Colorado, USA.
[24]
DOI
10.1080/17474086.2023.2183836
PMID
36920863
发布时间
2024-05-08
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