Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers.

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第一作者： Akshay,Sharma

第一单位： Department of Bone Marrow Transplantation and Cellular Therapy, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.

作者： Akshay,Sharma ^[1] ; Amanda,Young ^[2] ; Yvonne,Carroll ^[3] ; Himani,Darji ^[4] ; Yimei,Li ^[4] ; Belinda N,Mandrell ^[5] ; Marquita N,Nelson ^[6] ; Curtis L,Owens ^[6] ; Mary,Irvine ^[7] ; Mary,Caples ^[5] ; Lauren P,Jerkins ^[7] ; Yoram,Unguru ^[8] ; Jane S,Hankins ^[3] ; Liza-Marie,Johnson ^[9]

作者单位： Department of Bone Marrow Transplantation and Cellular Therapy, St. Jude Children's Research Hospital, Memphis, Tennessee, USA. ^[1] Department of Communication and Film, University of Memphis, Memphis, Tennessee, USA. ^[2] Department of Hematology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA. ^[3] Department of Biostatistics, St. Jude Children's Research Hospital, Memphis, Tennessee, USA. ^[4] Division of Nursing Research, St. Jude Children's Research Hospital, Memphis, Tennessee, USA. ^[5] Division of Hematology/Oncology, University of Tennessee Health Science Center, Memphis, Tennessee, USA. ^[6] Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA. ^[7] Division of Pediatric Hematology/Oncology, The Herman and Walter Samuelson Children's Hospital at Sinai, Baltimore, Maryland, USA.;Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland, USA. ^[8] Departmet of Oncology and Hematology/Oncology Hospitalist Medicine Program, St. Jude Children's Research Hospital, Memphis, Tennessee, USA. ^[9]

关键词 gene therapy hematology/oncology patient education

主题词人类(Humans);医疗护理提供者(Caregivers);贫血, 镰状细胞性(Anemia, Sickle Cell);健康知识, 态度, 实践(Health Knowledge, Attitudes, Practice);造血干细胞移植(Hematopoietic Stem Cell Transplantation)

DOI 10.1002/pbc.30319

PMID 36975201

发布时间 2024-06-03

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准确一般字义偏差语意偏离译文作用小提交