The Facioscapulohumeral Muscular Dystrophy-Health Index: Development and evaluation of a disease-specific outcome measure.

导出 LinkOut

翻译打印收藏纠错

第一作者： Anika,Varma

第一单位： Center for Health + Technology, University of Rochester, Rochester, New York, USA.

作者： Anika,Varma ^[1] ; Jennifer,Weinstein ^[1] ; Jamison,Seabury ^[1] ; Spencer,Rosero ^[1] ; Charlotte,Engebrecht ^[1] ; Ellen,Wagner ^[1] ; Christine,Zizzi ^[1] ; Elizabeth A,Luebbe ^[2] ; Nuran,Dilek ^[2] ; Michael P,McDermott ^[1] ; John,Kissel ^[2] ; Valeria,Sansone ^[3] ; Chad,Heatwole ^[4]

作者单位： Center for Health + Technology, University of Rochester, Rochester, New York, USA. ^[1] Department of Neurology, University of Rochester, Rochester, New York, USA. ^[2] Department of Biostatistics and Computational Biology, University of Rochester, Rochester, New York, USA. ^[3] Department of Neurology, The Ohio State University Wexner Medical Center, Columbus, Ohio, USA. ^[4] Department of Biomedical Sciences for Health, University of Milan, Milan, Italy. ^[5] The NEMO Clinical Center, Milan, Italy. ^[6]

关键词 clinical outcome assessment clinical trial drug label facioscapulohumeral muscular dystrophy patient-reported outcome

主题词成年人(Adult);人类(Humans);横断面研究(Cross-Sectional Studies);肌营养不良, 面肩肱型(Muscular Dystrophy, Facioscapulohumeral);结果可重复性(Reproducibility of Results);患病代价(Cost of Illness);疾病恶化(Disease Progression)

DOI 10.1002/mus.27951

PMID 37610084

发布时间 2023-09-26

翻译满意度评价：

准确一般字义偏差语意偏离译文作用小提交