Patient reported outcome measure for upper limb in Duchenne muscular dystrophy: correlation with PUL2.0.

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第一作者： Gianpaolo,Cicala

第一单位： Paediatric Neurology, Catholic University, Rome, Italy; Centro Clinico Nemo, Fondazione Policlinico Gemelli IRCCS, Rome, Italy.

作者： Gianpaolo,Cicala ^[1] ; Marika,Pane ^[1] ; Giorgia,Coratti ^[1] ; Claudia,Brogna ^[2] ; Lavinia,Fanelli ^[3] ; Giulia,Norcia ^[3] ; Nicola,Forcina ^[3] ; Elena,Mazzone ^[4] ; Giulia,Stanca ^[3] ; Roberta,Ferrante ^[3] ; Alessandra,Vento ^[3] ; Elisabetta,Ferraroli ^[4] ; Martina,Ricci ^[1] ; Anna,Capasso ^[1] ; Daniela,Leone ^[3] ; Concetta,Palermo ^[3] ; Beatrice,Berti ^[3] ; Costanza,Cutrona ^[4] ; Anna,Mahyew ^[5] ; Tina,Duong ^[6] ; Natalie,Goemans ^[7] ; Elizabeth,Vroom ^[8] ; Eugenio,Mercuri ^[9]

作者单位： Paediatric Neurology, Catholic University, Rome, Italy; Centro Clinico Nemo, Fondazione Policlinico Gemelli IRCCS, Rome, Italy. ^[1] Neuropsichiatria Infantile, Fondazione Policlinico Gemelli IRCCS, Rome, Italy. ^[2] Centro Clinico Nemo, Fondazione Policlinico Gemelli IRCCS, Rome, Italy. ^[3] Paediatric Neurology, Catholic University, Rome, Italy. ^[4] John Walton Muscular Dystrophy Research Centre, Institute of Genetic Medicine, Newcastle upon Tyne, UK. ^[5] Department of Neurology, Stanford University School of Medicine, Stanford, CA, USA. ^[6] Department of Child Neurology, University Hospitals Leuven, Leuven, Belgium. ^[7] Duchenne Parent Project, Veenendaal, the Netherlands. ^[8] Paediatric Neurology, Catholic University, Rome, Italy; Centro Clinico Nemo, Fondazione Policlinico Gemelli IRCCS, Rome, Italy; Neuropsichiatria Infantile, Fondazione Policlinico Gemelli IRCCS, Rome, Italy. Electronic address: eugeniomaria.mercuri@unicatt.it. ^[9]

关键词 Duchenne Functional Patient reported outcome measures Upper limb

主题词男(雄)性(Male);青年人(Young Adult);人类(Humans);日常生活活动(Activities of Daily Living);肌营养不良, 杜氏(Muscular Dystrophy, Duchenne);上肢(Upper Extremity)

DOI 10.1016/j.nmd.2023.07.003

PMID 37612177

发布时间 2023-10-03

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