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Development of respiratory care guidelines for Duchenne muscular dystrophy in the UK: key recommendations for clinical practice.

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第一作者: Anne-Marie,Childs
第一单位: Department of Paediatric Neurosciences, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
作者单位: Department of Paediatric Neurosciences, Leeds Teaching Hospitals NHS Trust, Leeds, UK. [1] John Walton Muscular Dystrophy Research Centre, Newcastle University Faculty of Medical Sciences, Newcastle upon Tyne, UK. [2] Division of Medical Specialties, University College London Hospitals NHS Foundation Trust, London, UK. [3] Academic Department of Respiratory Medicine, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK. [4] John Walton Muscular Dystrophy Research Centre, Newcastle University Faculty of Medical Sciences, Newcastle upon Tyne, UK.;Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK. [5] Patient Representative, Duchenne UK, London, UK. [6] Respiratory Neuromuscular Physiotherapy, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. [7] Leeds Centre for Children's Respiratory Medicine, Leeds Children's Hospital, Leeds General Infirmary, Leeds, UK. [8] Patient Representative, Duchenne Family Support Group, London, UK. [9] Department of Paediatrics, Guy's and St Thomas' NHS Foundation Trust, London, UK. [10] Queen Square Centre for Neuromuscular Diseases, University College London NHS Foundation Trust, London, UK.;Institute for Translational Neuroscience, University of Sheffield, Sheffield, UK. [11] North East Assisted Ventilation Service, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK. [12] Lane Fox Respiratory Unit, Guy's and St Thomas' NHS Foundation Trust, London, UK.;Centre for Human and Applied Physiological Sciences, King's College London, London, UK. [13] Department of Respiratory Medicine, Royal Stoke University Hospital, Stoke-on-Trent, UK. [14] Dubowitz Neuromuscular Centre, University College London, London, UK.;Paediatric Respiratory Medicine, Royal Brompton Hospital, London, UK. [15] John Walton Muscular Dystrophy Research Centre, Newcastle University Faculty of Medical Sciences, Newcastle upon Tyne, UK michela.guglieri@ncl.ac.uk.;Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK. [16]
DOI 10.1136/thorax-2023-220811
PMID 38123347
发布时间 2024-04-26
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