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Effects of tofersen treatment in patients with <i>SOD1</i>-ALS in a "real-world" setting - a 12-month multicenter cohort study from the German early access program.

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第一作者: Maximilian,Wiesenfarth
第一单位: Department of Neurology, Ulm University, 89081, Ulm, Germany.
作者单位: Department of Neurology, Ulm University, 89081, Ulm, Germany. [1] Department of Neurology, Ulm University, 89081, Ulm, Germany.;German Centre for Neurodegenerative Diseases (DZNE) Site Ulm, 89081, Ulm, Germany. [2] Department of Neurology, Ulm University, 89081, Ulm, Germany.;Institute of Human Genetics, Ulm University and Ulm University Medical Center, 89081, Ulm, Germany. [3] Institute of Human Genetics, Ulm University and Ulm University Medical Center, 89081, Ulm, Germany. [4] Department of Molecular Neurology, Friedrich-Alexander-Universität Erlangen-Nürnberg (FAU), 91054, Erlangen, Germany.;Deutsches Zentrum Immuntherapie (DZI), University Hospital Erlangen, 91054, Erlangen, Germany. [5] Department of Molecular Neurology, Friedrich-Alexander-Universität Erlangen-Nürnberg (FAU), 91054, Erlangen, Germany. [6] Department of Neurology, Hannover Medical School, 30625, Hannover, Germany. [7] Precision Neurology of Neuromuscular and Motoneuron Diseases, University of Lübeck, 23538, Lübeck, Germany. [8] Department of Neurology with Friedrich-Baur-Institute, LMU University Hospital, LMU Munich, 80336, München, Germany.;German Centre for Neurodegenerative Diseases (DZNE) Site Munich, 81377, Munich, Germany.;Munich Cluster for Systems Neurology (SyNergy), 81377, Munich, Germany. [9] Department of Neurology with Friedrich-Baur-Institute, LMU University Hospital, LMU Munich, 80336, München, Germany. [10] Department of Neurology and Center for Translational Neuro and Behavioral Sciences (C-TNBS), University Hospital Essen, 45127, Essen, Germany. [11] Department of Neurology, Ruhr-University Bochum, BG-Kliniken Bergmannsheil, 44789, Bochum, Germany. [12] Department of Neurology, University Hospital Carl Gustav Carus, Technische Universität Dresden, 01307, Dresden, Germany.;German Center for Neurodegenerative Diseases (DZNE) Site Dresden, 01307, Dresden, Germany. [13] Department of Neurology, University Hospital Carl Gustav Carus, Technische Universität Dresden, 01307, Dresden, Germany. [14] Department of Neurology, Helios Klinikum Krefeld, 47805, Krefeld, Germany. [15] Department for Neurodegenerative Disorders and Gerontopsychiatry, Bonn University, 53127, Bonn, Germany.;German Centre for Neurodegenerative Diseases (DZNE) Site Bonn, 53127, Bonn, Germany. [16] Division for Neurodegenerative Diseases, Neurology Department, Mannheim Center for Translational Medicine, University Medicine Mannheim, Heidelberg University, 68167, Mannheim, Germany. [17] Ambulanzpartner Soziotechnologie GmbH, 13353, Berlin, Germany. [18] Department of Neurology, Center for ALS and Other Motor Neuron Disorders, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, 13353, Berlin, Germany.;German Centre for Neurodegenerative Diseases (DZNE) Site Magdeburg, 39120, Magdeburg, Germany. [19] Department of Neurology, Center for ALS and Other Motor Neuron Disorders, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, 13353, Berlin, Germany. [20]
DOI 10.1016/j.eclinm.2024.102495
PMID 38384337
发布时间 2024-02-24
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