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Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research.

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第一作者: Rebecca E,Sadun
第一单位: Departments of Medicine and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA.
作者单位: Departments of Medicine and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA. [1] Department of Pediatrics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA. [2] Service de Pediatrie, Centre Hospitalier Universitaire de Lyon, Lyon, France. [3] Department of Allergology, Rheumatology and Clinical Immunology, University Medical Centre, Ljubljana, Slovenia. [4] Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow, Uttar Pradesh, India. [5] Department of Women's & Children's Health, University of Liverpool, Liverpool, UK.;Department of Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK. [6] Department of Pediatrics, Hospital for Special Surgery, New York, New York, USA. [7] Departments of Medicine and Pediatrics, The Ohio State University College of Medicine, Columbus, Ohio, USA. [8] TARGET LUPUS PPIE Group, University of Liverpool, Liverpool, UK. [9] Department of Pediatrics, University of Cincinnati, Cincinnati, Ohio, USA. [10] Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, USA. [11] Centre for Rheumatology, University College London, London, UK. [12] University of Nevada Reno School of Social Work, Reno, Nevada, USA. [13] Department of Pediatrics, Hofstra Northwell School of Medicine at Hofstra University, Hempstead, New York, USA. [14] Division of Rheumatology, Inflammation and Immunity, Brigham and Women's Hospital, Boston, Massachusetts, USA. [15] The University of Utah School of Medicine, Salt Lake City, Utah, USA. [16] Division of Rheumatology and Department of Pediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada.;Division of Rheumatology, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada. [17] Erasmus MC University Medical Center, Rotterdam, The Netherlands. [18] NIHR Great Ormond Street Hospital Biomedical Research Centre, University College London, London, UK.;Institute of Child Health and Department of Paediatric Nephrology, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK. [19] Department of Pediatrics, The Aga Khan University Medical College East Africa, Nairobi, Kenya. [20] Department of Pediatrics, Hacettepe University, Ankara, Turkey. [21] Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA. [22] Direzione Scientifica, IRCCS Istituto Giannina Gaslini and Dipartimento di Neuroscienze, Riabilitazione, Oftalmologia, Genetica e Scienze Materno-Infantili, Università degli Studi di Genova, Genova, Italy. [23] Departments of Population Health Sciences and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA. [24] Children's Hospital at Montefiore, New York, New York, USA. [25] Pediatric Rheumatology Division, Faculdade de Medicina de Botucatu, Universidade Estadual Paulista (UNESP), Botucatu, Brazil. [26] Institute of Child Health, Paediatric Rheumatology Division, Sir Ganga Ram Hospital, New Delhi, India. [27] Department of Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA. [28] Department of Pediatrics, University of California San Francisco, San Francisco, California, USA. [29] Department of Child and Adolescent Health, University of Cape Town, Rondebosch, South Africa.;Division of Pediatric Rheumatology, University of Ottawa, Ottawa, Ontario, Canada. [30] Patient/Caregiver Representative, Childhood Arthritis and Rheumatology Research Alliance, Milwaukee, Wisconsin, USA. [31] Department of Pediatrics, The University of British Columbia, Vancouver, Columbia, Canada.;BC Children's Hospital, Vancouver, Columbia, Canada. [32] National Institutes of Health, National Institute of Arthritis and Musculoskeletal and Skin Diseases, Bethesda, Maryland, USA. [33] Department of Women's & Children's Health, University of Liverpool, Liverpool, UK esmith8@liverpool.ac.uk.;Department of Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK. [34]
DOI 10.1136/ard-2024-226528
PMID 39379141
发布时间 2024-12-31
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