Development of CARRA/PReS-endorsed consensus Core and Expanded Datasets in childhood-onset systemic lupus erythematosus for international registry-based research.
第一作者:
Rebecca E,Sadun
第一单位:
Departments of Medicine and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA.
作者:
Rebecca E,Sadun [1]
;
Jennifer C,Cooper [2]
;
Alexandre,Belot [3]
;
Tadej,Avcin [4]
;
Amita,Aggarwal [5]
;
Jenny,Ainsworth [6]
;
Alisha,Akinsete [7]
;
Stacy P,Ardoin [8]
;
Michael W,Beresford [6]
;
Lynette,Bortey [9]
;
Hermine I,Brunner [10]
;
Joyce C,Chang [11]
;
Coziana,Ciurtin [12]
;
Ashley,Daftary [13]
;
Barbara,Eberhard [14]
;
Candace H,Feldman [15]
;
Christian M,Hedrich [6]
;
Aimee O,Hersh [16]
;
Linda T,Hiraki [17]
;
David A,Isenberg [12]
;
Sylvia,Kamphuis [18]
;
Andrea M,Knight [17]
;
Lou,Lambert [9]
;
Deborah M,Levy [17]
;
Stephen D,Marks [19]
;
Naomi,Maxwell [9]
;
Angela,Migowa [20]
;
Katharine,Moore [2]
;
Seza,Ozen [21]
;
Rosalind,Ramsey-Goldman [22]
;
Angelo,Ravelli [23]
;
Bryce B,Reeve [24]
;
Tamar B,Rubinstein [25]
;
Claudia,Saad-Magalhaes [26]
;
Sujata,Sawhney [27]
;
Laura E,Schanberg [28]
;
Emily,von Scheven [29]
;
Christiaan,Scott [30]
;
Mary Beth,Son [11]
;
Gladys,Tony [31]
;
Elissa R,Weitzman [11]
;
Scott E,Wenderfer [32]
;
Alisha,Woodside [31]
;
Laura B,Lewandowski [33]
;
Eve Md,Smith [34]
;
CARRA SLE Committee and PReS Lupus Working Party
作者单位:
Departments of Medicine and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA.
[1]
Department of Pediatrics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
[2]
Service de Pediatrie, Centre Hospitalier Universitaire de Lyon, Lyon, France.
[3]
Department of Allergology, Rheumatology and Clinical Immunology, University Medical Centre, Ljubljana, Slovenia.
[4]
Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow, Uttar Pradesh, India.
[5]
Department of Women's & Children's Health, University of Liverpool, Liverpool, UK.;Department of Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
[6]
Department of Pediatrics, Hospital for Special Surgery, New York, New York, USA.
[7]
Departments of Medicine and Pediatrics, The Ohio State University College of Medicine, Columbus, Ohio, USA.
[8]
TARGET LUPUS PPIE Group, University of Liverpool, Liverpool, UK.
[9]
Department of Pediatrics, University of Cincinnati, Cincinnati, Ohio, USA.
[10]
Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, USA.
[11]
Centre for Rheumatology, University College London, London, UK.
[12]
University of Nevada Reno School of Social Work, Reno, Nevada, USA.
[13]
Department of Pediatrics, Hofstra Northwell School of Medicine at Hofstra University, Hempstead, New York, USA.
[14]
Division of Rheumatology, Inflammation and Immunity, Brigham and Women's Hospital, Boston, Massachusetts, USA.
[15]
The University of Utah School of Medicine, Salt Lake City, Utah, USA.
[16]
Division of Rheumatology and Department of Pediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada.;Division of Rheumatology, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada.
[17]
Erasmus MC University Medical Center, Rotterdam, The Netherlands.
[18]
NIHR Great Ormond Street Hospital Biomedical Research Centre, University College London, London, UK.;Institute of Child Health and Department of Paediatric Nephrology, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
[19]
Department of Pediatrics, The Aga Khan University Medical College East Africa, Nairobi, Kenya.
[20]
Department of Pediatrics, Hacettepe University, Ankara, Turkey.
[21]
Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
[22]
Direzione Scientifica, IRCCS Istituto Giannina Gaslini and Dipartimento di Neuroscienze, Riabilitazione, Oftalmologia, Genetica e Scienze Materno-Infantili, Università degli Studi di Genova, Genova, Italy.
[23]
Departments of Population Health Sciences and Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA.
[24]
Children's Hospital at Montefiore, New York, New York, USA.
[25]
Pediatric Rheumatology Division, Faculdade de Medicina de Botucatu, Universidade Estadual Paulista (UNESP), Botucatu, Brazil.
[26]
Institute of Child Health, Paediatric Rheumatology Division, Sir Ganga Ram Hospital, New Delhi, India.
[27]
Department of Pediatrics, Duke University School of Medicine, Durham, North Carolina, USA.
[28]
Department of Pediatrics, University of California San Francisco, San Francisco, California, USA.
[29]
Department of Child and Adolescent Health, University of Cape Town, Rondebosch, South Africa.;Division of Pediatric Rheumatology, University of Ottawa, Ottawa, Ontario, Canada.
[30]
Patient/Caregiver Representative, Childhood Arthritis and Rheumatology Research Alliance, Milwaukee, Wisconsin, USA.
[31]
Department of Pediatrics, The University of British Columbia, Vancouver, Columbia, Canada.;BC Children's Hospital, Vancouver, Columbia, Canada.
[32]
National Institutes of Health, National Institute of Arthritis and Musculoskeletal and Skin Diseases, Bethesda, Maryland, USA.
[33]
Department of Women's & Children's Health, University of Liverpool, Liverpool, UK esmith8@liverpool.ac.uk.;Department of Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
[34]
DOI
10.1136/ard-2024-226528
PMID
39379141
发布时间
2024-12-31
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