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Transition and management of patients with Duchenne Muscular Dystrophy: a narrative review based on Italian experts' opinion and real-world experience.

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第一作者： Carlotta,Spagnoli

第一单位： Child Neurology Unit, Presidio Ospedaliero Provinciale Santa Maria Nuova, AUSL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

作者： Carlotta,Spagnoli ^[1] ; Rachele,Adorisio ^[2] ; Luca,Bello ^[3] ; Adele,D'Amico ^[4] ; Maria Grazia,D'Angelo ^[5] ; Marika,Pane ^[6] ; Martina,Penzo ^[3] ; Pietro,Riguzzi ^[3] ; Valeria,Sansone ^[7] ; Andrea,Vianello ^[8] ; Carlo,Fusco ^[1]

作者单位： Child Neurology Unit, Presidio Ospedaliero Provinciale Santa Maria Nuova, AUSL-IRCCS di Reggio Emilia, Reggio Emilia, Italy. ^[1] Heart Failure, Transplant and Mechanical Cardiocirculatory Support Unit, Department of Pediatric Cardiology and Cardiac Surgery, Heart Lung Transplantation, ERN GUARD HEART: Bambino Gesù Hospital and Research Institute, Rome, Italy. ^[2] Department of Neurosciences, University of Padua, Padua, Veneto, Italy. ^[3] Department of Neuroscience, Catholic University, Rome, Italy. ^[4] Istituto di Ricerca e Cura a Carattere Scientifico E. Medea, La Nostra Famiglia, Bosisio Parini, Italy. ^[5] Pediatric Neurology and Nemo Clinical Centre, Fondazione Policlinico Universitario A. Gemelli IRCSS, Università Cattolica del Sacro Cuore, Roma, Italy. ^[6] Centro Clinico Nemo Milan, Neurorehabilitation Unit, Dipartimento di Scienze Biomediche della Salute, University of Milan, Milan, Italy. ^[7] Respiratory Pathophysiology Division, University of Padua, Padua, Italy. ^[8]

关键词 Duchenne muscular dystrophy ataluren loss of ambulation transition

医学主题词人类(Humans);肌营养不良, 杜氏(Muscular Dystrophy, Duchenne);意大利(Italy);疾病管理(Disease Management);疾病恶化(Disease Progression)

DOI 10.36185/2532-1900-447

PMID 39468966

发布时间 2024-11-07

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