换一批
换一批Improving organisation to improve care: ERN ReCONNET organisational reference model for systemic sclerosis patients' care pathway.
第一作者：
Rosaria,Talarico
第一单位：
Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
作者：
Rosaria,Talarico [1]
;
Diana,Marinello [1]
;
Ilaria,Palla [2]
;
Sara,Cannizzo [2]
;
Ilaria,Galetti [3]
;
Sue,Farrington [4]
;
Silvia,Aguilera [5]
;
Jeanette,Andersen [6]
;
Eva,Ceccatelli [7]
;
Alain,Cornet [6]
;
Gema,Cutillas [8]
;
Marco,Esteves [9]
;
Charissa,Frank [10]
;
Catarina,Leite [11]
;
Gabi,Niehaus [12]
;
Elisabeth,Perez Gomez [8]
;
Katleen,Polfliet [13]
;
Silvia,Sandulescu [14]
;
Rita,Schriemer [15]
;
Simone,Barsotti [16]
;
Silvia,Bellando-Randone [17]
;
Lorenzo,Beretta [18]
;
Vera,Bernardino [19]
;
Goncalo,Boleto [20]
;
Stefano,Bombardieri [21]
;
Gerd,Burmester [22]
;
Ilaria,Cavazzana [23]
;
Veronica,Codullo [24]
;
Maurizio,Cutolo [25]
;
Virgil,Dalm [26]
;
Laura,Damian [27]
;
Alessandra,Della Rossa [1]
;
Andrea,Doria [28]
;
Meryem-Maud,Farhat [29]
;
João Eurico,Fonseca [20]
;
Eric,Hachulla [29]
;
Frédéric,Houssiau [30]
;
Maria,Grazia Lazzaroni [23]
;
Maarten,Limper [31]
;
Valentina,Lorenzoni [2]
;
Carlomaurizio,Montecucco [24]
;
Marta,Mosca [1]
;
Luc,Mouthon [32]
;
Ulf,Müeller-Ladner [33]
;
Micheline,Pha [34]
;
Cristina,Ponte [20]
;
Julia,Spierings [31]
;
Alberto,Sulli [25]
;
Anna Viola,Taulaigo [19]
;
Simone,Ticciati [1]
;
Angela,Tincani [23]
;
Natasha,Toplak [35]
;
Leopoldo,Trieste [2]
;
P M,van Hagen [36]
;
Jacob,van Laar [31]
;
Marie,Vanthuyne [37]
;
Barbara,Vigone [18]
;
Jeska K,de Vries-Bouwstra [38]
;
Margherita,Zen [28]
;
Giuseppe,Turchetti [2]
;
Vanessa,Smith [39]
;
Marco,Matucci Cerinic [40]
作者单位：
Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
[1]
Institute of Management, Scuola Superiore Sant'Anna, Pisa, Italy.
[2]
FESCA Federation of European Scleroderma Associations, Saint Maur, Belgium.;GILS Gruppo Italiano Lotta alla Sclerodermia, Milan, Italy.
[3]
FESCA Federation of European Scleroderma Associations, Saint Maur, Belgium.
[4]
SRUK Scleroderma & Raynaud's UK, London, UK.;Spanish Association for Antiphospholipid Syndrome (SAF España), Elche, Spain.
[5]
Lupus Europe, Brussels, Belgium.
[6]
Scuola Superiore Sant'Anna, Pisa, Italy.
[7]
AEE Asociación Española de Escleredermia (Spanish Scleroderma Association), Madrid, Spain.
[8]
Portuguese Association of Scleroderma patients, Moncao, Portugal.
[9]
Flemish Association for Hereditary Connective Tissue Disorders (Bindweefsel.be), Koersel, Belgium.
[10]
University of Minho, Braga, Portugal.
[11]
FESCA Federation of European Scleroderma Associations, Munich, Germany.
[12]
Sclero'ken vzw Belgische vereniging Sclerodermie, Sinaai, Belgium.
[13]
Romanian Association of Patient with Scleroderma, Bucarest, Romania.
[14]
Nationale vereniging voor mensen met lupus, APS, sclerodermie en MCTD (Dutch Association for people living with lupus, APS, Scleroderma and MCTD), Utrecht, The Netherlands.
[15]
Rheumatology Outpatient Clinic and Internal Medicine, Livorno Hospital, Livorno, Italy.
[16]
Division of Rheumatology, Department of Experimental and Clinical Medicine, University of Florence, AOU Careggi, Florence, Italy.
[17]
Referral Center for Systemic Autoimmune Diseases, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, Milan, Italy.
[18]
Unidade de Doenças Autoimunes, Hospital Curry Cabral, Centro Hospitalar Universitário Lisboa Central, Unidade Local de Saúde S. José, Centro Clínico Académico de Lisboa, Nova Medical School, Universidade Nova de Lisboa, Lisbon, Portugal.
[19]
Rheumatology Department, Hospital de Santa Maria, Centro Hospitalar Universitário Lisboa Norte, Lisbon Academic Medical Centre, Lisbon, Portugal.;Rheumatology Research Unit, Instituto de Medicina Molecular, Faculdade de Medicina, Universidade de Lisboa, Lisbon, Portugal.
[20]
University of Pisa, Pisa, Italy.
[21]
Department of Rheumatology and Clinical Immunology, Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.;Berlin Institute of Health, Berlin, Germany.
[22]
Rheumatology and Clinical Immunology Unit, ASST-Spedali Civili and University of Brescia, Brescia, Italy.
[23]
Department of Rheumatology, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.
[24]
Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, IRCCS Polyclinic Hospital San Martino, University of Genoa, Genoa, Italy.
[25]
Department of Internal Medicine and Department of Immunology, Erasmus Medical Center, Rotterdam, The Netherlands.
[26]
Department of Rheumatology, County Emergency Clinical Hospital Cluj-Napoca, Centre for Rare Musculoskeletal Autoimmune and Autoinflammatory Diseases, Cluj-Napoca, Romania.
[27]
Rheumatology Unit, Department of Medicine, University of Padova, Padua, Italy.
[28]
Department of Internal Medicine and Clinical immunology, Referral Centre for Rare Systemic Auto-immune Diseases North and North-West Mediterranean and Guadeloupe, University of Lille, Lille, France.;Inserm, CHU Lille, U1286 - INFINITE, University of Lille, Lille, France.
[29]
Department of Rheumatology, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
[30]
Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.
[31]
Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies Systémiques Autoimmunes et Autoinflammatoires Rares d'Ile de France, de l'Est et de l'Ouest, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, Paris, France.
[32]
Department of Rheumatology and Clinical Immunology, Campus Kerckhoff, Justus Liebig University of Giessen, Bad Nauheim, Germany.
[33]
Service de Médecine Interne 2, centre de réference maladies rares d'Ile-de-France, Centre et Martinique, Assistance Publique-Hôpitaux de Paris (AP-HP), Groupement Hospitalier Pitié-Salpêtrière, Paris, France.
[34]
Department of Allergology, Rheumatology and Clinical Immunology, University Children's Hospital Ljubljana, University Medical Centre Ljubljana, Ljubljana, Slovenia.;Department of Pediatrics, Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia.
[35]
Department of Internal Medicine, Division of Allergy & Clinical Immunology and Department of Immunology, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
[36]
Department of Rheumatology, Cliniques Universitaires Saint-Luc, Pôle de Pathologies Rhumatismales Inflammatoires et Systémiques, Université Catholique de Louvain, Brussels, Belgium.
[37]
Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.
[38]
Department of Rheumatology, Ghent University Hospital Department of Internal Medicine, Ghent, Belgium.;Unit for Molecular Immunology and Inflammation, VIB Inflammation Research Centre (IRC), Ghent, Belgium.
[39]
Unit of Immunology, Rheumatology, Allergy and Rare Diseases, IRCCS San Raffaele Hospital, Milan, Italy.
[40]
DOI
10.1177/23971983241269109
PMID
39544904
发布时间
2024-11-16
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Journal of scleroderma and related disorders
Journal of scleroderma and related disorders
23971983241269109页
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