German Real-World Experience of Patients with Diverse Features of Acute Intermittent Porphyria Treated with Givosiran.

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作者： Ilja,Kubisch ^[1] ; Nils,Wohmann ^[1] ; Thaddäus Till,Wissniowski ^[1] ; Thomas,Stauch ^[2] ; Lucienne,Oettel ^[1] ; Eva,Diehl-Wiesenecker ^[3] ; Rajan,Somasundaram ^[3] ; Ulrich,Stölzel ^[1]

作者单位： Porphyria Center, Chemnitz Hospital, 09116 Chemnitz, Germany. ^[1] MVZ Labor Volkmann, 76131 Karlsruhe, Germany. ^[2] Department of Emergency Medicine and Porphyria Clinic, Charité-Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, 10115 Berlin, Germany. ^[3]

关键词 AHP AIP ALA ALAS1 Fatigue Assessment Scale (FAS)HR-QoL Ipnet PBG chronic symptoms fatigue givosiran siRNA sporadic attack

DOI 10.3390/jcm13226779

PMID 39597922

发布时间 2024-11-30

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Journal of clinical medicine

2024年13卷22期

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German Real-World Experience of Patients with Diverse Features of Acute Intermittent Porphyria Treated with Givosiran.

Journal of clinical medicine

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Journal of clinical medicine

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German Real-World Experience of Patients with Diverse Features of Acute Intermittent Porphyria Treated with Givosiran.

Journal of clinical medicine

相似文献

Journal of clinical medicine

相关期刊

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