Proposal and exploration of a novel score to quantify patient-perceived burden of inflammatory bowel disease under routine care.

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第一作者： Joseph L,Pipicella

第一单位： Crohn's Colitis Cure, Sydney, New South Wales, Australia.;Medicine & Health (South Western Sydney Clinical School), University of New South Wales, Sydney, New South Wales, Australia.;Gastroenterology, Hepatology and Inflammatory Bowel Disease Research Group, Ingham Institute for Applied Medical Research, Liverpool, New South Wales, Australia.

作者： Joseph L,Pipicella ^[1] ; Bonita,Gu ^[2] ; Jack,McNamara ^[3] ; William,Wilson ^[4] ; Lyle J,Palmer ^[5] ; Susan J,Connor ^[6] ; Jane M,Andrews ^[7]

作者单位： Crohn's Colitis Cure, Sydney, New South Wales, Australia.;Medicine & Health (South Western Sydney Clinical School), University of New South Wales, Sydney, New South Wales, Australia.;Gastroenterology, Hepatology and Inflammatory Bowel Disease Research Group, Ingham Institute for Applied Medical Research, Liverpool, New South Wales, Australia. ^[1] Medicine & Health (South Western Sydney Clinical School), University of New South Wales, Sydney, New South Wales, Australia.;Department of Gastroenterology and Hepatology, Liverpool Hospital, Sydney, New South Wales, Australia. ^[2] Gastroenterology, Hepatology and Inflammatory Bowel Disease Research Group, Ingham Institute for Applied Medical Research, Liverpool, New South Wales, Australia.;Department of Gastroenterology and Hepatology, Liverpool Hospital, Sydney, New South Wales, Australia. ^[3] Department of Surgical Specialties and Anesthesia, Lyell McEwin Hospital, Adelaide, South Australia, Australia.;Medical Information Office, SA Health, Adelaide, South Australia, Australia. ^[4] School of Public Health, University of Adelaide, Adelaide, South Australia, Australia. ^[5] Crohn's Colitis Cure, Sydney, New South Wales, Australia.;Medicine & Health (South Western Sydney Clinical School), University of New South Wales, Sydney, New South Wales, Australia.;Gastroenterology, Hepatology and Inflammatory Bowel Disease Research Group, Ingham Institute for Applied Medical Research, Liverpool, New South Wales, Australia.;Department of Gastroenterology and Hepatology, Liverpool Hospital, Sydney, New South Wales, Australia. ^[6] Crohn's Colitis Cure, Sydney, New South Wales, Australia.;Gastroenterology, General & GI Surgery, Central Adelaide Local Health Network, Adelaide, South Australia, Australia.;Faculty of Health Sciences, School of Medicine, University of Adelaide, Adelaide, South Australia, Australia. ^[7]

关键词 inflammatory bowel diseases patient outcome assessment quality of life registries