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Spiritual Well-Being and Phenoconversion in Huntington's Disease: Analysis from the Prospective Huntington at Risk Observational Study.

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第一作者： Leonard L,Sokol

第一单位： The Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.;McGaw Bioethics Scholars Program, Center for Bioethics and Humanities, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.;Division of Palliative Medicine, Department of Medicine, University of California, San Francisco, San Francisco, California, USA.;Division of Neurology, Department of Medicine, Scripps Clinic, La Jolla, California, USA.

作者： Leonard L,Sokol ^[1] ; Marissa C,Ashner ^[2] ; Danny,Bega ^[3] ; Benzi M,Kluger ^[4] ; Alexander K,Smith ^[5] ; Karen S,Marder ^[6] ; Tanya P,Garcia ^[2] ; PHAROS Investigators of the Huntington Study Group

作者单位： The Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.;McGaw Bioethics Scholars Program, Center for Bioethics and Humanities, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.;Division of Palliative Medicine, Department of Medicine, University of California, San Francisco, San Francisco, California, USA.;Division of Neurology, Department of Medicine, Scripps Clinic, La Jolla, California, USA. ^[1] Department of Biostatistics, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA. ^[2] The Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA. ^[3] Departments of Neurology and Medicine, University of Rochester Medical Center, Rochester, New York, USA. ^[4] Division of Geriatrics, Department of Medicine, University of California, San Francisco, San Francisco, California, USA. ^[5] Department of Neurology, Columbia University Medical Center, New York, New York, USA. ^[6]

关键词 Huntington’s disease neuropalliative phenoconversion purpose in life